Table 5 Themes and subthemes

1. Increased knowledge and awareness around the topic of hearing health for group members and wider society

1.1 (Increased) knowledge to individual and society

1.2 Raising awareness (of hearing loss and cochlear implants) for the individual and society

2. Supporting research

3. Inclusivity within the group

4. Opportunity to make a difference for people in the future

5. Running of the group/ group organisation

5.1 Effective communication and organisation within the group

5.2 Suggestions for organising the group