Table 1 Sample items and respective scales from the survey with mesothelioma researchers
Patient and Public Involvement & Engagement (PPI/E) activities at the agenda setting stage | Always | Usually | Sometimes | Rarely | Never | N/A |
|---|---|---|---|---|---|---|
How often do you include the following PPI/E tasks and activities when setting your research agenda? | ||||||
1. Identifying or generating research topics or questions | □ | □ | □ | □ | □ | □ |
2. Prioritising topics for research | □ | □ | □ | □ | □ | □ |
3. Providing a patient perspective on outcomes that are important to patients and their families | □ | □ | □ | □ | □ | □ |
Extremely beneficial | Quite beneficial | Neither beneficial nor unhelpful | Somewhat Beneficial | Not at all beneficial | Don’t know, N/A | |
|---|---|---|---|---|---|---|
At which stage of the research do you find PPI/E most beneficial for your own research? | ||||||
1. Agenda setting | □ | □ | □ | □ | □ | □ |
2. Applying for funding | □ | □ | □ | □ | □ | □ |
3. Dissemination | □ | □ | □ | □ | □ | □ |