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Table 3 Sample questions posed by participants during the “Black People Like Me” virtual conference sessions

From: “Black People Like Me”: A virtual conference series to engage underserved patients with asthma in patient centered outcomes research

Themes

Sub-themes

Sample responses

Vaccine

Safety

What if you are allergic to aspirin? Is the vaccine safe?

Dosage

Are there any repercussions to missing the second COVID-19 vaccine?

Longevity

Will we need a booster vaccine in the fall?

Access

Where can I get vaccinated?

Efficacy

With the vaccine, can you still get and spread the virus?

Side effects

What are the long-term effects of the vaccine? Infertility? Can the vaccine cause loss of taste, smell, or both?

Hesitancy

How do you instill trust with Black Americans that the vaccine is safe?

Allergy interactions

Those who are denied a vaccine due to allergies what option of defense due they have?

Variants

If we've had the two vaccines, is it safe to join society again in light of the variants?

Disease management

Children

What’s the best way to help children with asthma make their lungs stronger (or make asthma less of a problem)? Exercise? Certain foods?

Age

What is the lifespan of people living with asthma on medication vs without? How long do they live? What specific age groups are meant by "elderly" versus "younger"?

Recommendations

It would be great if an app is developed to provide feedback regarding controller medication use to the provider and the parent, similar to diabetes type 1 care

Interrelated factors

Is there any significant link between depression and asthma? Asthma and COPD, what is the difference and is there any link? Does stress trigger asthma? Is having asthma a risk factor in COVID-19? Is asthma a disability?

Treatment options

Is there a long-term asthma treatment under development or testing that may change lives of the asthmatic community? Is asthma curable like malaria? Why is it important for asthma patients to stick to an asthma control action plan?

Health equity

Environment

What role does environmental racism play in the disproportionate numbers in Black Americans with asthma?

Race and comorbidity

In the study with African Americans and Latinos with asthma, were comorbidities a factor in emergency room visits and asthma related deaths?

Race

I've personally not taken the COVID-19 vaccine. Do you think we should take it, as Blacks, or we should abstain? I feel we may be given substandard ones. Why are Black people more affected by COVID-19 than White people?

Sex

Why does COVID-19 tend to affect more men than females?

Outreach

Education

What are some ways that we can educate our communities about asthma?

Webinar distribution

When will this webinar be available for rebroadcast? Will this session be archived so that we can share it with others who were not able to log on?

Patient engagement

How can someone become a patient partner in a study?