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Table 2 Engagement activities and tactics stratified by themes

From: Engaging people who use drugs in clinical research: integrating facilitated telemedicine for HCV into substance use treatment

Engagement activities

Descriptions

Theme 1: Understanding the unique culture and community of each OTP

 Learning the culture of the OTP

Research team learns about the OTP and its mission

CM supports the OTP staff by integrating into OTP workflows

 Attending OTP events

CM illustrates interest in patient-participants as individuals beyond the study

CM integrates into overall OTP activities

Theme 2: Building trusting relationships through education, communication, and feedback

 Staff appreciation and learning lunches

Research team presents study procedures to OTP staff

Research team educates OTP staff about HCV

Research team obtains feedback from OTP staff and patient-participants to troubleshoot challenges

OTP staff and patient-participants appreciate and express the value of an HCV cure

 TM introductory video

CM introduces concept of facilitated TM to patient-participants

 Language translations

Research team demonstrates respect and expands reach of patient-participants

Theme 3: Enhancing collaborative care and incorporating the patient voice to improve health outcomes

 Research team roles

Telemedicine provider

  Patient-participants connect with HCV specialist to manage HCV care remotely

Case manager

  Facilitates TM encounters and HCV treatment

  Addresses patient-participant concerns and questions

 Patient-participant incentives

Research team demonstrates respect for patient-participants’ time

Patient-participants value financial compensation

 Warm handoffs

Counselor introduces patient-participants to CM

CM disseminates study-specific information

CM establishes trusting relationships with patient-participants

CM addresses patient-participants’ concerns or misconceptions related to study, HCV treatment, or facilitated TM

 OTP staff roles

Counselor

  Introduces patient-participants to CM

  Facilitates patient-participants contact to promote recruitment, enrollment, retention, and adherence

  Recognizes profound changes after HCV cure in patient-participants

Onsite clinician

  Acts as familiar face to patient-participants during TM encounters

  Addresses patient-participant concerns, co-morbidities, and treatment-related questions and concerns

  Reinforces medication adherence

  Enhances connectivity with TM provider

Nurse

  Dispenses methadone and HCV medications

  Acts as a first line of contact for patient-participants with questions or adverse events

  Maintains confidentiality during dosing

  Illustrates trust with expanded “take-home” doses

 Patient advisory committee

Represents the patients’ voices

Addresses concerns about study procedures

Provides feedback to research team

Reinforces importance of study participation

Disseminates information to patients

  1. CM case manager, HCV hepatitis C virus, OTP opioid treatment program, TM telemedicine