Table 1 Demographic characteristics of initial survey participants
Demographic characteristic | Â |
|---|---|
Role | Â |
Person with myeloma | 339 (57.07%) |
Caregiver of person with myeloma | 73 (12.29%) |
Healthcare provider for people with myeloma | 27 (4.55%) |
Othera | 15 (2.53%) |
Not specified | 140 (23.57%) |
Total (N) | 594 (100%) |
Language | Â |
English | 481 (80.98%) |
French | 113 (19.02%) |
Total (N) | 594 (100%) |
Gender | Â |
Woman | 271 (45.62%) |
Man | 184 (30.98%) |
Prefer to self-identify | 1 (0.17%) |
Not specified | 138 (23.23%) |
Total (N) | 594 (100%) |
Mean age (SD) | 63.50 (10.74) |
Race (note: participants could check all that applied) |  |
Indigenous | 5 (0.84%) |
Arab or West Asian | 3 (0.51%) |
Black | 3 (0.51%) |
Chinese | 3 (0.51%) |
Filipino | 1 (0.17%) |
Japanese | 1 (0.17%) |
Korean | 2 (0.34%) |
Latin American | 2 (0.34%) |
South Asian | 1 (0.17%) |
South East Asian | 5 (0.84%) |
White | 426 (71.72%) |
Other | 12 (2.02%) |
Not Specified | 138 (23.23%) |
Province | Â |
Alberta | 50 (8.42%) |
British Columbia | 90 (15.15%) |
Manitoba | 12 (2.02%) |
New Brunswick | 20 (3.37%) |
Newfoundland and Labrador | 8 (1.35%) |
Nova Scotia | 20 (3.37%) |
Ontario | 161 (27.10%) |
Prince Edward Island | 4 (0.67%) |
Quebec | 80 (13.47%) |
Saskatchewan | 10 (1.68%) |
Not Specified | 139 (23.40%) |
Total (N) | 594 (100%) |
Community size | Â |
Extra Large Population Centre (more than 500,000) | 148 (24.92%) |
Large Population Centre (100,000–500,000) | 118 (19.87%) |
Medium Population Centre (30,000–100,000) | 73 (12.29%) |
Small Population Centre (1000–30,000) | 80 (13.47%) |
Rural area (less than 1000) | 27 (4.55%) |
Do not know | 10 (1.68%) |
Not specified | 138 (23.23%) |
Total ( N) | 594 (100%) |
Mean years since diagnosis (SD;Â patient) | 5.58 (4.67) |
Current myeloma treatment (patient) |  |
No | 68 (20.06%) |
Yes | 258 (76.11%) |
Not specified | 13 (3.83%) |
Patient sub-group total (n) | 339 (100%) |
Mean years since diagnosis (SD;Â caregiver) | 5.07 (3.90) |
Healthcare profession | Â |
Physician | 8 (29.63%) |
Nurse | 7 (25.93%) |
Pharmacist | 6 (22.22%) |
Other | 5 (18.52%) |
Not Specified | 1 (3.70%) |
Healthcare provider sub-group total (n) | 27 (100%) |
Mean years caring (SD; healthcare provider) | 12.96 (9.24) |