Table 3 Overview of the PPM’s roles and benefits
Level | Roles | Benefits |
|---|---|---|
Research team | Receive feedback and suggestions from parent-partners Identify parent-partners’ needs and issues Liaise between parent-partners and researchers Create a safe space | Improvement of research team environment (e.g., meeting schedule and format, clarification of roles) Immediate connection and trust building through the lived experience Provision of emotional support |
Network | Liaise between parent-partners and the Network Support community-building | Informal monitoring of engagement Improvement of Network-level communication and support (e.g., accessible newsletter, compensation) |