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Table 1 The characteristics of workshop one participants

From: Patient and public involvement to inform priorities and practice for research using existing healthcare data for children’s and young people’s cancers

Characteristic

Workshop 1

n (%)

Workshop 2

n (%)

Total

(n = 16)

YP (n = 10)

C

(n = 6)

Total (n = 8)

YP

(n = 4)

C

(n = 4)

Sex

 Female

13 (81)

8 (80)

5 (83.3)

5 (62.5)

2 (50)

3 (75)

 Male

3 (19)

2 (20)

1 (16.7)

3 (37.5)

2 (50)

1 (25)

Ethnicity

 White

12 (75)

8 (80)

4 (66.7)

5 (62.5)

2 (50)

3 (75)

 Asian/mixed

4 (25)

2 (20)

2 (33.3)

3 (37.5)

2 (50)

1 (25)

Current age (years)

 16–25

10 (60)

10 (100)

0 (0)

4 (50)

4 (100)

0

 Over 25

6 (40)

0 (0)

6 (100)

4 (50)

0

4 (100)

Cancer type of CYP*

 Solid tumour

4 (40)

4 (40)

2 (50)

2 (50)

 Haematological

6 (60)

6 (60)

2 (50)

2 (50)

Current country of residence

 England

14 (87.5)

9 (90)

5 (83.3)

7 (87.5)

3 (75)

3 (75)

 Scotland

2 (12.5)

1 (10)

1 (16.7)

1 (12.5)

1 (25)

1 (25)

  1. *This data is only reported for young people as understandably some bereaved parents did not want to share this information