Table 2 Patient engagement characteristics of studies (n = 316)
Patient engagement characteristic | Number of studies (%) |
|---|---|
Stage of research where patient partners contributed | |
Study design | 250 (79) |
Dissemination of results | 157 (50) |
Data analysis | 137 (43) |
Funding | 54 (17) |
Priority setting | 52 (17) |
Data collection | 45 (14) |
Developing patient engagement strategy | 24 (8) |
Ethics | 11 (3) |
Governance | 76 (24) |
General priority setting | 42 (13) |
General outcome derivation | 16 (5) |
Not reported | 5 (2) |
Level of engagement | |
Consult | 111 (35) |
Collaborate | 73 (23) |
Empower | 19 (6) |
Consult and Collaborate | 76 (24) |
Consult and Empower | 11 (3) |
Collaborate and Empower | 8 (3) |
Consult and Collaborate and Empower | 6 (2) |
Activities are unclear | 12 (4) |