Table 1 Adapted guidance for reporting patient and public involvement, modified guidance for reporting involvement of patients and the public short form

Author/year of publication

 Aim

Report the aim of PPI

Type of document^a*

 Study design^a

Qualitative or quantitative design

 Study population^a

Which patient or public population took part in PPI

 PPI term¶

Term used to describe PPI

 People involved

People involved in PPI

 Theoretical underpinning^a°

The theoretical rationale and any theoretical influences relating to PPI

 Identifying and Prioritizing^a

NIHR

 Commissioning^a

 Designing and managing^a

 Undertaking^a

 Disseminating^a

 Implementing^a

 Evaluating Impact^a

Method used

 Results

Outcomes: Report the results of PPI in the document, including both positive and negative outcomes

Methods to evaluate impact

 Findings

The impact of PPI on researchers, patients and public involved in the research process

 Discussion and Conclusions

Outcomes: Comment on the extent to which PPI influenced the study overall. Describe positive and negative effects

 Reflections

Comment critically on the study, reflecting on the things that went well and those that did not, so others can learn from this experience