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  1. Protocol

    Study protocol: Determining what young people with rheumatic disease consider important to research (the Young People’s Opinions Underpinning Rheumatology Research - YOURR project)

    Involving young people in research about their health is increasingly recognized as being important to make sure that research is focused more on the needs of young people. However, at present, ideas about wha...

    Suzanne Parsons, Kate Dack, Bella Starling, Wendy Thomson and Janet E. McDonagh

    Research Involvement and Engagement 2016 2:22

    Published on: 11 June 2016

  2. Research article

    Patients’ perspectives can be integrated in health technology assessments: an exploratory analysis of CADTH Common Drug Review

    In Canada, the CADTH Common Drug Review helps ensure that scarce health care resources are used to fund the most effective drugs. Clinicians, researchers, payers, and patients all have important, but potential...

    Sarah Berglas, Lauren Jutai, Gail MacKean and Laura Weeks

    Research Involvement and Engagement 2016 2:21

    Published on: 7 June 2016

  3. Protocol

    The Ottawa Citizen Engagement and Action Model (OCEAM): A Citizen engagement Strategy Operationalized Through The Participatory Research in Ottawa, Management and Point-of-care of Tobacco (PROMPT) Study

    The PROMPT study is a community-based research project designed to understand the factors which affect smoking as well as ways to manage, reduce and quit smoking among people who use drugs in Ottawa. There is ...

    Smita Pakhale, Tina Kaur, Kelly Florence, Tiffany Rose, Robert Boyd, Joanne Haddad, Donna Pettey, Wendy Muckle and Mark Tyndall

    Research Involvement and Engagement 2016 2:20

    Published on: 21 May 2016

  4. Research article

    Patient and public involvement in patient safety research: a workshop to review patient information, minimise psychological risk and inform research

    Patient safety is a growing research area. However, although patients and the public are increasingly involved in clinical research, there is little guidance on how best to involve patients in patient safety r...

    Dominic Furniss, Ioanna Iacovides, Imogen Lyons, Ann Blandford and Bryony Dean Franklin

    Research Involvement and Engagement 2016 2:19

    Published on: 17 May 2016

  5. Research article

    Patient involvement in a qualitative meta-synthesis: lessons learnt

    Patients and researchers must work together to improve the relevance and quality of research. Qualitative systematic reviews synthesise findings from a range of published qualitative studies to identify common...

    Kerin Bayliss, Bella Starling, Karim Raza, Eva C. Johansson, Codruta Zabalan, Susan Moore, Diana Skingle, Tiina Jasinski, Susan Thomas and Rebecca Stack

    Research Involvement and Engagement 2016 2:18

    Published on: 12 May 2016

  6. Research article

    Consumer and community involvement in health and medical research: evaluation by online survey of Australian training workshops for researchers

    In Australia, since 2009, the Consumer and Community Involvement Program (formerly the Consumer and Community Participation Program) has developed and run workshops to help people working in health and medical...

    Anne McKenzie, Kirsten Alpers, Jane Heyworth, Cindy Phuong and Bec Hanley

    Research Involvement and Engagement 2016 2:16

    Published on: 9 May 2016

  7. Research article

    A patient and public involvement (PPI) toolkit for meaningful and flexible involvement in clinical trials – a work in progress

    Funders of research are increasingly requiring researchers to involve patients and the public in their research. Patient and public involvement (PPI) in research can potentially help researchers make sure that...

    Heather J. Bagley, Hannah Short, Nicola L. Harman, Helen R. Hickey, Carrol L. Gamble, Kerry Woolfall, Bridget Young and Paula R. Williamson

    Research Involvement and Engagement 2016 2:15

    Published on: 27 April 2016

  8. Research article

    Prioritising target behaviours for research in diabetes: Using the nominal group technique to achieve consensus from key stakeholders

    The behaviour of people with diabetes (e.g. taking medication) and the behaviour of doctors and other healthcare professionals (e.g. checking patients’ blood sugar) are important. Our research group wanted to ...

    Jennifer Mc Sharry, Milou Fredrix, Lisa Hynes and Molly Byrne

    Research Involvement and Engagement 2016 2:14

    Published on: 6 April 2016

  9. Research article

    Exploring the challenge of health research priority setting in partnership: reflections on the methodology used by the James Lind Alliance Pressure Ulcer Priority Setting Partnership

    The James Lind Alliance (JLA) brings patients, carers and clinicians together in Priority Setting Partnerships (PSPs) to identify and prioritise shared uncertainties about the effects of treatment. The JLA eme...

    Mary Madden and Richard Morley

    Research Involvement and Engagement 2016 2:12

    Published on: 2 April 2016

  10. Research article

    Evaluating public involvement in research design and grant development: Using a qualitative document analysis method to analyse an award scheme for researchers

    The National Institute for Health Research (NIHR) Research Design Service (RDS) for Yorkshire and Humber has been running a public involvement funding scheme since 2008. This scheme awards researchers a small ...

    Susan Baxter, Delia Muir, Louise Brereton, Christine Allmark, Rosemary Barber, Lydia Harris, Brian Hodges, Samaira Khan and Wendy Baird

    Research Involvement and Engagement 2016 2:13

    Published on: 1 April 2016

  11. Methodology

    Combining PPI with qualitative research to engage ‘harder-to-reach’ populations: service user groups as co-applicants on a platform study for a trial

    It is recommended that research studies are carried out with or by patients and the public through their involvement from the beginning and in as many stages as possible (known as PPI). Some studies formally i...

    Heather Morgan, Gill Thomson, Nicola Crossland, Fiona Dykes and Pat Hoddinott

    Research Involvement and Engagement 2016 2:7

    Published on: 24 March 2016

  12. Research article

    Patient-reported quality indicators for osteoarthritis: a patient and public generated self-report measure for primary care

    People with osteoarthritis desire high quality care, support and information. However, the quality of care for people with OA in general practice is not routinely collected. Quality Indicators can be used to b...

    Steven Blackburn, Adele Higginbottom, Robert Taylor, Jo Bird, Nina Østerås, Kåre Birger Hagen, John J. Edwards, Kelvin P. Jordan, Clare Jinks and Krysia Dziedzic

    Research Involvement and Engagement 2016 2:5

    Published on: 17 March 2016

  13. Review article

    Engaging older adults in healthcare research and planning: a realist synthesis

    The importance of citizen involvement in healthcare research and planning has been widely recognized. There is however, a lack of understanding of how best to engage older adults, Canada's fastest growing segm...

    Heather McNeil, Jacobi Elliott, Kelsey Huson, Jessica Ashbourne, George Heckman, Jennifer Walker and Paul Stolee

    Research Involvement and Engagement 2016 2:10

    Published on: 7 March 2016

  14. Research article

    A SHARED study-the benefits and costs of setting up a health research study involving lay co-researchers and how we overcame the challenges

    In the United Kingdom (UK), official bodies such as the Department of Health and research funders such as the National Institute for Health Research support and encourage lay involvement in all stages of resea...

    Carole Mockford, Matt Murray, Kate Seers, Jan Oyebode, Richard Grant, Sue Boex, Sophie Staniszewska, Yvonne Diment, Jim Leach, Uma Sharma, Rosemary Clarke and Rashida Suleman

    Research Involvement and Engagement 2016 2:8

    Published on: 3 March 2016

  15. Commentary

    The patient voice in research—evolution of a role

    Engaging patients in research studies is becoming more common because it makes research and its results more relevant for patients. It is important to understand the best ways for patients and researchers to w...

    Dianne S. Johnson, Mary T. Bush, Susan Brandzel and Karen J. Wernli

    Research Involvement and Engagement 2016 2:6

    Published on: 22 February 2016

  16. Commentary

    Older people’s priorities in health and social care research and practice: a public engagement workshop

    A one day public engagement workshop was held to focus on the priorities of older people about research and practice in health and social care. Seventy-five older people from the general public and a variety o...

    Dalal Alsaeed, Nathan Davies, Julia Fiona-Maree Gilmartin, Elizabeth Jamieson, Kalpa Kharicha, Ann E. M. Liljas, Bahijja Tolulope Raimi-Abraham, Janine Aldridge, Felicity J. Smith, Kate Walters and Mine Orlu Gul

    Research Involvement and Engagement 2016 2:2

    Published on: 6 February 2016

  17. Methodology

    Patient and public involvement in primary care research - an example of ensuring its sustainability

    The international literature on patient and public involvement (PPI) in research covers a wide range of issues, including active lay involvement throughout the research cycle; roles that patients/public can pl...

    Clare Jinks, Pam Carter, Carol Rhodes, Robert Taylor, Roger Beech, Krysia Dziedzic, Steven Blackburn, Rhian Hughes and Bie Nio Ong

    Research Involvement and Engagement 2016 2:1

    Published on: 14 January 2016

  18. Research article

    More than just ticking a box…how patient and public involvement improved the research design and funding application for a project to evaluate a cycling intervention for hip osteoarthritis

    Involving patients and the public in research helps to ensure that research remains relevant, and has an impact on the people it aims to benefit. Funding bodies now require patients and the public to be involv...

    Lisa M. Andrews, Helen Allen, Zoë A. Sheppard, Guy Baylis and Thomas W. Wainwright

    Research Involvement and Engagement 2015 1:13

    Published on: 27 November 2015

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