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Table 1 Examples of Public and Patient Involvement in research

From: Study protocol: Determining what young people with rheumatic disease consider important to research (the Young People’s Opinions Underpinning Rheumatology Research - YOURR project)

1. Involvement in identifying research priorities  
2. Co-design of interventions  
3. As members of a project advisory or steering group  
4. Commenting and developing patient information leaflets or other research materials  
5. Undertaking interviews with research participants  
6. User and/or carer researchers carrying out the research.  
7. Dissemination events of results