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Table 3 Lack of involvement of young people in Rheumatology research – From BSPAR survey data

From: Study protocol: Determining what young people with rheumatic disease consider important to research (the Young People’s Opinions Underpinning Rheumatology Research - YOURR project)

Nature of involvement % not involved
Setting research agendas 80 %
Development of protocols 64 %
Design of interventions 60 %
Membership of advisory boards 64 %
Dissemination of results 60 %
As co-researchers 80 %
Recruitment of research staff who will have direct contact with young people 80 %