Skip to main content

Table 1 Meeting Statements

From: Giving voice to older adults living with frailty and their family caregivers: engagement of older adults living with frailty in research, health care decision making, and in health policy

Which of the following do you most identify as?a

Easy to read information in waiting rooms is an effective way to communicate to patients

If I were a patient, I would read a one-page summary about research projects

TVN needs to play a central role in providing guidance and support for patient engagement in research

We need to educate health care organizations about research and the importance of engagement

We need a flexible engagement model (technology supported/money and time to support participation/go to the grail citizen)

Research is needed into why/how the frail elder becomes engaged in research

Frail elders do not always identify as frail

The voice of the frail elder is not always represented by the voice of the caregiver

We need to consider different venues outside the usual and need for co-presenters (researcher + frail citizen)

We need to consider alternative sources of information

TVN needs to provide resources/experts to researchers that help them to effectively conduct person-centred research

Need research measures/outcomes are that are meaningful to frail citizens (e.g., pain/function/good death/Quality of Life)

Research teams should have a citizen leader in addition to a scientific leader

TVN should support citizens/family caregivers to mentor each other in the research process

TVN needs to train researchers about how to engage frail citizens effectively

Engagement of frail elderly in health and social organizations should be mandated

Continuity of care should be supported by electronic health records and other tools to communicate decisions between care settings

TVN needs to create tools and education packages for health care providers on ways to meaningfully engage frail elderly and caregivers

TVN and advocates of frail elderly issues should make the issue of frailty a priority at local/regional levels so that it can have more political influence

  1. Responses to questions were structured as follows, unless stated otherwise: Rate the extent to which you agree with the below statement. Strongly agree; agree; neutral; disagree; strongly disagree
  2. aWhich of the following do you most identify as? Advocacy group representative; citizen or volunteer caregiver; health care provider or administrator; policy person; researcher; other
Back to article page

Research Involvement and Engagement

ISSN: 2056-7529

Contact us