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Table 4 Frequency of themes in the analyzed sample of patient-led project applications

From: Patients’ motivations and interest in research: characteristics of volunteers for patient-led projects on PatientsLikeMe

Theme

Frequency (%)

Healthcare planning needs

8 (24%)

Treatment outcomes

6 (18%)

Symptom assessment

4 (12%)

Understanding disease

5 (15%)

Patient focused care

2 (6%)

Incomplete information

8 (24%)