|Coded theme||Dimensions of the issue and reflective questions|
|Choice and limitations||
The problem of different roles, scope and resourcing|
Who decides? Can PPI representatives change/increase their input if they want to?
Literacy (health, educational, cognitive); mobility; distance; digital.|
What are ‘reasonable’ adjustments? Can we ever be inclusive enough?
Socio-demographics of the ‘available and willing’ are not reflective of needs for some studies – different models can overcome this but how can we ensure diversity of views?
The ‘professional’ PPI representative – conflict between growing their expertise over time and their need to maintain a ‘lay’ perspective
Important enabler of PPI input and maximising contribution.|
Can become obligated/collusive. Need to avoid dependency.
Interpersonal skills really important especially for the main PPI link. Also understanding of group dynamics.|
Both researchers and PPI representatives need to be open to new ideas and learning.
|Attitudes||Respect, professionalism, honesty in all concerned (or involved)|
The right inputs at all stages|
Gaining and retaining funding
Gaining and retaining skills over time
‘Employment’ or ‘volunteer’ status|
Pay/tax/human resource requirements./consequences for benefits
Risks where personal needs and priorities dominate the PPI input|
Pushback – not accepting limits of role or resources
|Impact||How do we define and measure impact?!|