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Table 2 The range of approaches used to consult the public during the design of a study that were confirmed as involvement

From: Public involvement could usefully inform ethical review, but rarely does: what are the implications?

• Clinicians talking to a few patients in their clinic
• Presenting the proposal at an event or conference
• Presentations to patient groups – either local groups or linked to a charity
• Consulting standing public involvement panels within local trusts or universities, research networks, charities
• Discussion with one named patient
• Organising a meeting with patients (sometimes with National Institute for Health Research (NIHR) Research Design Service funding)
• Setting up an advisory group for the project for consultation at this stage and subsequently deciding to keep the group in place for the remainder of the project
• Consulting a number of patient groups including project specific and professional groups
• Consulting a steering committee or advisory group overseeing the project which had patient members as well as professionals
• Developing the study within a Network Clinical Studies Group
• Receiving input via patient members of the funders’ grant review committee