Skip to main content

Table 1 Descriptive details of patient and public involvement in included studies (see references [25,26,27,28,29,30,31,32,33,34,35,36,37,38,39,40,41,42,43,44])

From: Patient and public involvement in health literacy interventions: a mapping review

Authors/date/ country Title; study format Who was involved, how many participants and how they participated
Age UK 2007–2012 UK Fit as a Fiddle; single arm Stakeholders (n = unclear) Design, management, evaluation Volunteers (n = 4500) Management of classes and supporting roles Older people (n = 881) Evaluation
Aspinall 2012 USA Health Literacy for Older Adults: Using Evidence to Build a Model Educational Program; single arm Older people (n varied between 11 and 17) Design of workshop topics identified through needs assessment.
Blanson Henkeman 2008 USA Usability of an adaptive computer assistant that improves self-care and health literacy of older adults; single arm Older adults (n = 28) Evaluation of usability
Coughlan 2012 Ireland The importance of health literacy in the development of ‘Self Care’ cards for community pharmacies in Ireland; single arm Patients (n = 199) Evaluated self-care cards for 10 ailments
Dwamena 2009 USA Teaching medical interviewing to patients: the other side of the encounter; single arm Patients (n varied between 1 and 22) Design-to convert a medical student curriculum for medical interviewing for patients’ use
Eckman 2012 USA Impact of health literacy on outcomes and effectiveness of an educational intervention in patients with chronic diseases; RCT Patients (n = unclear) Evaluate pilot test outcomes questionnaire
Ferreira 2005 USA Health care provider-directed intervention to increase colorectal cancer screening among veterans: results of a randomized controlled trial; RCT Older people (n = unclear) Design of the patient intervention to be administered by healthcare providers in two outpatient firms.
FØrland 2013 Sweden Implementation of a Standardised Health Education in a local context. A case study; single arm Peers (n = 3) Management-sharing their experiences in health education programmes
Gray 2010 USA Low health literacy as a barrier to medication adherence in patients with diabetes; single arm Patients (n = 49) Evaluation of the project and written educational tool in easy-to-read language
Goeman 2013 Australia Educational intervention for older people with asthma: A randomised controlled trial; RCT Older people (n = unclear) Design of Patient Asthma Concerns Tool (PACT)
Kagawa-Singer 2009 USA Outcomes of a breast health project for Hmong women and men in California; not-RCT Hmong men and women, key community workers, advisory boards (n = unclear) Design of the culturally specific intervention-flipchart, video, and brochure Hmong women (n = 354) intervention
Long 2012 UK Enhancing health literacy and behavioural change within a tele-care education and support intervention for people with type 2 diabetes; single arm Patients (n = 156) Evaluation only pre/post questionnaire and interviews about blood sugar control on selected sample.
Mayberry 2011 USA Bridging the digital divide in diabetes: Family support and implications for health literacy; single arm Patients (n = 75) Evaluation of website
Murray 2007 USA Pharmacist intervention to improve medication adherence in heart failure: A randomized trial; RCT Patients (n = unclear) Design patient centre instructions for the intervention Patients (314) intervention
Pomerantz 2010 USA Connecting for health literacy: health information partners (HIPs); single arm Health Information Partners (HIPS) (n = 24) and Minority groups (n = 91) Design, management and evaluation of the outreach activities use
Poureslami 2012 Canada Effectiveness of educational interventions on asthma self-management in Punjabi and Chinese asthma patients: A randomised controlled trial; RCT Patients, family and community groups (n = 35) Design of educational material Patients (n = 40) Evaluation of educational material
Schulz 2010 Switzerland Coping with chronic lower back pain: Designing and testing the online tool ONESELF; single arm Patients (n = 15) Design of website Patients (n = 748) Management and evaluation
Valle 2006 USA Fotonovelas: A health literacy tool for educating Latino older adults about dementia; single arm Members of the Alzheimer’s Association (n = unclear) Design of tool Ethnic older adults (n = 111) Evaluation
Welch 2010 USA Merging health literacy with computer technology: self-managing diet and fluid intake among adult haemodialysis patients; single arm Renal patients (n = 40) Design and evaluation to confirm previous findings and create their own interfaces
Williams 2013 USA Kin KeeperSM: Design and baseline characteristics of a community-based randomized controlled trial promoting cancer screening in Black, Latina, and Arab women; RCT Ethnic women (n = 514) Design-recruitment Community stakeholders (n = unclear) Design of studies, test and validate measure implementation of intervention
  1. Note: RCT Randomised controlled trial, single arm no comparator group described, not-RCT Multi-arm non-randomised trial (active and control arms, but not RCT format)