From: Service user reflections on the impact of involvement in research
Panel Perspective | Researcher Perspective |
---|---|
Enhancing research proposals by providing practical suggestions to improve research design e.g. recruitment, sampling, treatment approaches, and outcome measures. | Highlighting the benefits and issues to be addressed e.g. selection bias, data collection tools, information governance issues, and wider involvement of service users. |
Identifying potential issues that may not have occurred to the researcher. | Roles and training of members of the research team e.g. conducting interviews. |
Giving a patient perspective and experience e.g. customising materials to improve recruitment, participant burden, and planned intervention. | Adapting methods of data collection e.g. consistency of language, number and length of interviews, and focusing on key outcome measures. |
Improving information accessibility for research participants e.g. lay summaries, participant information sheets, consent forms, and recruitment materials. | Being inclusive e.g. using more easily understandable language, avoiding acronyms, creating aphasia friendly information to avoid exclusion. |
Reinforcing the importance of the research. | Prompted us to seek funding following service user feedback. |
Providing an effective forum for debate; concentrating on key elements from the patient’s perspective. | Reinforced patient engagement and using a co-design methodology. |