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Table 3 Checklist of recommendations for the inclusion of people with deafblindness in a discussion group

From: Overcoming barriers to the involvement of deafblind people in conversations about research: recommendations from individuals with Usher syndrome

Considerations

Recommendations

Check

Room

Large, quiet space with a flexible layout (i.e. not fixed tables and seating) and can accommodate more people than anticipated and with access to an outside area

 

Lighting

Room provides control over levels of light, both natural (e.g. windows have blinds) and artificial (e.g. dimmer switch or the ability turn off groups of lights around the room) sources

 

Agenda

Agenda is broken down into 20 to 30-min sessions with 10 to 20-min breaks in between

 

Documents

Printed materials are in large print (18 point and above), sans-serif fonts (e.g. Arial) and high contrast (e.g. black text on a yellow background) or in braille formats as required

 

Documents have been sent out in advance; either printed or in a screen reader / text-to-speech friendly format (e.g. not PDF)

 

Interpreting/lipspeaking

Attendees have confirmed if they will be providing their own interpreters; if so, attendee/interpreters have confirmed any requirements for interpretation

 

If you are required to provide interpreters:

Interpreting needs of attendees have been confirmed (e.g. British Sign Language, hands-on signing, lipspeaking etc.)

 

At least two interpreters (to allow interpreters to alternate and to have a break) have been identified, and both are NRCPD registered

 

Interpreters have experience working with individuals who are deafblind

 

Interpreters have experience working with scientific content (e.g. health, biomedical research etc.)

 

Relevant materials relating to the content of the meeting, have been sent in advance to interpreters

 

Audio communication tools

Room is fitted with an audio induction loop

 

Speech to text (e.g. captioner, palantypist) is available for those who cannot use the available sign language options

 

There is sufficient easy access to power points for people’s accessibility aids (e.g. smartphones, tablets, e-readers, laptops etc.)

 

Emotional wellbeing

Relevant information on/access to patient organisations, peer-to-peer support; counselling is available

 

Skilled/trained and sensitive facilitator

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