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Table 3 Checklist of recommendations for the inclusion of people with deafblindness in a discussion group

From: Overcoming barriers to the involvement of deafblind people in conversations about research: recommendations from individuals with Usher syndrome

Considerations Recommendations Check
Room Large, quiet space with a flexible layout (i.e. not fixed tables and seating) and can accommodate more people than anticipated and with access to an outside area  
Lighting Room provides control over levels of light, both natural (e.g. windows have blinds) and artificial (e.g. dimmer switch or the ability turn off groups of lights around the room) sources  
Agenda Agenda is broken down into 20 to 30-min sessions with 10 to 20-min breaks in between  
Documents Printed materials are in large print (18 point and above), sans-serif fonts (e.g. Arial) and high contrast (e.g. black text on a yellow background) or in braille formats as required  
Documents have been sent out in advance; either printed or in a screen reader / text-to-speech friendly format (e.g. not PDF)  
Interpreting/lipspeaking Attendees have confirmed if they will be providing their own interpreters; if so, attendee/interpreters have confirmed any requirements for interpretation  
If you are required to provide interpreters:
Interpreting needs of attendees have been confirmed (e.g. British Sign Language, hands-on signing, lipspeaking etc.)  
At least two interpreters (to allow interpreters to alternate and to have a break) have been identified, and both are NRCPD registered  
Interpreters have experience working with individuals who are deafblind  
Interpreters have experience working with scientific content (e.g. health, biomedical research etc.)  
Relevant materials relating to the content of the meeting, have been sent in advance to interpreters  
Audio communication tools Room is fitted with an audio induction loop  
Speech to text (e.g. captioner, palantypist) is available for those who cannot use the available sign language options  
There is sufficient easy access to power points for people’s accessibility aids (e.g. smartphones, tablets, e-readers, laptops etc.)  
Emotional wellbeing Relevant information on/access to patient organisations, peer-to-peer support; counselling is available  
Skilled/trained and sensitive facilitator