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Table 1 Chronology of BRIGHTLIGHT patient involvement

From: Involving young people in BRIGHTLIGHT from study inception to secondary data analysis: insights from 10 years of user involvement

Year Activity
2008 Core Consumer Group (CCG) present at Find Your Sense of Tumour (FYSOT)
2009 Essence of Care study begins
CCG conduct peer-to-peer interviews
CCG conduct data analysis
CCG member assists with facilitating professional workshop
2010 CCG conduct second consultation at FYSOT
CCG present at Plenary Session National Cancer Research Institute (NCRI) Conference
CCG present at INVOLVE conference
2011 CCG present Essence of Care results at FYSOT
Workshop to present Essence of Care results back to CCG and study participants
Workshop to create study name: BRIGHTLIGHT
2012 BRIGHTLIGHT logo launched
Focus groups to develop the BRIGHTLIGHT survey Young Advisory Panel (YAP) workshop to develop the website
2013 YAP workshop on access to research
YAP instigate launch of Twitter
2014 YAP member interviewed by BBC5 Live Radio
YAP members create video of information sheets
YAP workshop on study retention
BRIGHTLIGHT public and patient involvement and engagement (PPIE) featured in the NCRI newsletter
YAP present at FYSOT
2015 BRIGHTLIGHT featured in INVOLVE newsletter
YAP workshops - generating hypotheses, and body image and sexuality
YAP launch new website
2016 YAP workshop on online information needs
YAP member presents at NCRI Conference Schools Session
2017 Begin production of dissemination play, There is a Light
Opening night of There is a Light at the S!CK festival
YAP co-chair the joint TYAC-BRIGHTLIGHT conference
YAP workshop on sexuality
  1. CCG Core Consumer Group, FYSOT Find Your Sense of Tumour, NCIN National Cancer Intelligence Network, NCRI National Cancer Research Institute, PPIE public and patient involvement and engagement, RCN Royal College of Nursing, YAP Young Advisory Panel