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Table 1 Summary of Impacts

From: ‘A group of totally awesome people who do stuff’ - a qualitative descriptive study of a children and young people’s patient and public involvement endeavour

Impact Area

Dimension

Output/Outcome/Product

Research Process

CCRF paediatric healthy volunteer study

Increase in recruitment rate

Alterations to participant information sheet

Alterations to protocol (dietary component)

Quality Improvement

CCRF service user co-produced publications

Under 6 Photo Story ‘Ettie takes part in a research study’

6–10 years Photo Story ‘Lizzie takes part in a research study’

Eleven+ Photo Story ‘James takes part in a research study’

Children’s Activity Menu

CCRF patient experience

Creation of ‘age specific’ patient experience questionnaires

Service Development

CCRF service user co-developed facilities

Design of paediatric phlebotomy room

Equipment testing for suitability for Paediatric Use (BodPod, Calorimeter Room)

CCRF service user co-designed website

https://cambridge.CCRF.nihr.ac.uk/patientpublic/involving-children-and-young-people-at-the-CCRF/