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Table 3 Level of patient engagement in research

From: Engaging children and families in pediatric Health Research: a scoping review

Level of patient engagement Articles employing levels of patient engagement Description of level (based on IAP2 adapted version by SPOR)
Learn/Inform 16, 22, 26, 29 “In open atmosphere for sharing through orientation and information sessions, and media campaigns”
Participate 18, 20,23, 24, 26, 27, 28 “Through quantitative, qualitative, or mixed methods research”
Consult 15, 16, 17a, 19, 21,23,25, 27, 28, 30 “Through scientific cafes, focus groups, priority settings activities, and as members of ad hoc working groups or expert panels”
Involve 14, 15, 16, 18, 22, 25, 26, 28, 29 “As members of standing working groups and advisory committees or panels”
Collaborate 14, 17b, 24, 28, 29 “Patients as co-investigators”
Lead/Support 16, 18 “Through patient or community steering committees and patients as principle investigators”