Table 3 Level of patient engagement in research
From: Engaging children and families in pediatric Health Research: a scoping review
Level of patient engagement | Articles employing levels of patient engagement | Description of level (based on IAP2 adapted version by SPOR) |
|---|---|---|
Learn/Inform | 16, 22, 26, 29 | “In open atmosphere for sharing through orientation and information sessions, and media campaigns” |
Participate | 18, 20,23, 24, 26, 27, 28 | “Through quantitative, qualitative, or mixed methods research” |
Consult | 15, 16, 17a, 19, 21,23,25, 27, 28, 30 | “Through scientific cafes, focus groups, priority settings activities, and as members of ad hoc working groups or expert panels” |
Involve | 14, 15, 16, 18, 22, 25, 26, 28, 29 | “As members of standing working groups and advisory committees or panels” |
Collaborate | 14, 17b, 24, 28, 29 | “Patients as co-investigators” |
Lead/Support | 16, 18 | “Through patient or community steering committees and patients as principle investigators” |