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Table 2 Patients’ experience of communication and handling of side effects/symptomsa

From: Patients’ experience of communication and handling of symptomatic adverse events in breast cancer patients receiving adjuvant chemotherapy

 ePRO
(n = 191)
n (%)
Usual care
(n = 248)
n (%)
p -values×
Did you experience any symptoms/side effects during your treatment with chemotherapy?  p = 0.003
 Yes183 (95.8)222 (89.5) 
 No6 (3.1)25 (10.1) 
 Missing2 (1.0)1 (0.4) 
Before each cycle of chemotherapy, you have answered a questionnaire regarding side effects/symptoms. Did you experience any side effects/symptoms not mentioned in the questionnaire?  p = 0.005
 No109 (57.1)95 (38.3) 
 Yes61 (31.9)113 (45.6) 
 Do not know6 (3.1)9 (3.6) 
 Missing15 (7.9)31 (12.5) 
Did you talk with the oncologist/nurse about your answers to the questionnaire regarding side effects/symptoms before each cycle of chemotherapy?  p = 0.000
 Yes, always100 (52.4)160 (64.5) 
 Yes, most of the times38 (19.9)48 (19.4) 
 Yes, some times35 (18.3)20 (8.1) 
 No, never12 (6.3)1 (0.4) 
 Do not know0 (0)2 (0.8) 
 Missing6 (3.1)17 (6.9) 
Did you experience any side effects/symptoms between to treatments that you did not talk with the oncologist/nurse about at the following chemotherapy cycle?  p = 0.217
 No164 (85.9)208 (83.9) 
 Yes16 (8.4)20 (8.1) 
 Do not know4 (2.1)3 (1.2) 
 Missing7 (3.7)17 (6.9) 
Do you experience that you have got the help you needed in correlation to alleviating your side effects/symptoms, e.g. medication, physiotherapy, dietitian, counselling?  p = 0.225
 I did not have any need15 (7.9)16 (6.5) 
 Yes, to a great extent157 (82.2)193 (77.8) 
 Yes, to some degree12 (6.3)19 (7.7) 
 To a lesser extent1 (0.5)2 (0.8) 
 No, not at all0 (0.0)0 (0) 
 Do not know1 (0.5)0 (0) 
 Missing5 (2.6)18 (7.3) 
Overall, how satisfied have you been with the way nurses and oncologists have talked with you about/handled your side effects/symptoms?  p = 0.066
 Very satisfied163 (85.3)190 (76.6) 
 Satisfied20 (10.5)40 (16.1) 
 Not satisfied nor unsatisfied3 (1.6)2 (0.8) 
 Unsatisfied/Very unsatisfied0 (0)0 (0) 
 Missing5 (2.6)16 (6.5) 
  1. ×p-values from chi-square test
  2. aResults from PREM questionnaire