Table 2 Patients’ experience of communication and handling of side effects/symptomsa
ePRO (n = 191) n (%) | Usual care (n = 248) n (%) | p -values× | |
|---|---|---|---|
Did you experience any symptoms/side effects during your treatment with chemotherapy? | p = 0.003 | ||
Yes | 183 (95.8) | 222 (89.5) | |
No | 6 (3.1) | 25 (10.1) | |
Missing | 2 (1.0) | 1 (0.4) | |
Before each cycle of chemotherapy, you have answered a questionnaire regarding side effects/symptoms. Did you experience any side effects/symptoms not mentioned in the questionnaire? | p = 0.005 | ||
No | 109 (57.1) | 95 (38.3) | |
Yes | 61 (31.9) | 113 (45.6) | |
Do not know | 6 (3.1) | 9 (3.6) | |
Missing | 15 (7.9) | 31 (12.5) | |
Did you talk with the oncologist/nurse about your answers to the questionnaire regarding side effects/symptoms before each cycle of chemotherapy? | p = 0.000 | ||
Yes, always | 100 (52.4) | 160 (64.5) | |
Yes, most of the times | 38 (19.9) | 48 (19.4) | |
Yes, some times | 35 (18.3) | 20 (8.1) | |
No, never | 12 (6.3) | 1 (0.4) | |
Do not know | 0 (0) | 2 (0.8) | |
Missing | 6 (3.1) | 17 (6.9) | |
Did you experience any side effects/symptoms between to treatments that you did not talk with the oncologist/nurse about at the following chemotherapy cycle? | p = 0.217 | ||
No | 164 (85.9) | 208 (83.9) | |
Yes | 16 (8.4) | 20 (8.1) | |
Do not know | 4 (2.1) | 3 (1.2) | |
Missing | 7 (3.7) | 17 (6.9) | |
Do you experience that you have got the help you needed in correlation to alleviating your side effects/symptoms, e.g. medication, physiotherapy, dietitian, counselling? | p = 0.225 | ||
I did not have any need | 15 (7.9) | 16 (6.5) | |
Yes, to a great extent | 157 (82.2) | 193 (77.8) | |
Yes, to some degree | 12 (6.3) | 19 (7.7) | |
To a lesser extent | 1 (0.5) | 2 (0.8) | |
No, not at all | 0 (0.0) | 0 (0) | |
Do not know | 1 (0.5) | 0 (0) | |
Missing | 5 (2.6) | 18 (7.3) | |
Overall, how satisfied have you been with the way nurses and oncologists have talked with you about/handled your side effects/symptoms? | p = 0.066 | ||
Very satisfied | 163 (85.3) | 190 (76.6) | |
Satisfied | 20 (10.5) | 40 (16.1) | |
Not satisfied nor unsatisfied | 3 (1.6) | 2 (0.8) | |
Unsatisfied/Very unsatisfied | 0 (0) | 0 (0) | |
Missing | 5 (2.6) | 16 (6.5) |