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Table 1 Semi-structured interview guide

From: Being involved in research as a collaborator with experience of a prenatal diagnosis of congenital heart defect in the fetus: a qualitative study

Main question

Follow-up questions

Can you describe how it was for you to work with the group?

How was it to share your experiences together with the other members in the group?

What did it mean for you to talk about your experiences together with the other members?

What kind of feelings and thoughts did you have when you talked about your experiences with the other members?

How open with your experiences, feelings and thoughts did you feel that you could be when talking to the other members?

What positive aspects related to participating in the project were there for you?

What negative aspects related to participating in the project were there for you?

How do you feel today about the fact that you decided to participate in the project?

How do you feel about participating in planning of future research?

How did you experience the method of meeting a group consisting of others with similar lived experience as you have, with the purpose to plan future research?

Is there any other method besides group meetings that you would have preferred?

How do you feel that the group collaborated?

What influence do you feel that you had on future research?

What perspectives do you have concerning when researchers collaborate with persons who have lived experience to plan future research?

What benefits do you think there is when researchers collaborate with persons who have lived experience?

What problems do you think result when researchers collaborate with persons who have lived experience?