Table 2 Participant and community representatives
Participants | Community representatives | |
|---|---|---|
Number involved in PPI | 88 | 11 |
Number responded | 46 (52%) | 8 (73%) |
Agea | ||
18–29 | 3 (7%) | 0 (0%) |
30–39 | 13 (30%) | 1 (13%) |
40–49 | 16 (36%) | 4 (50%) |
50–59 | 6 (14%) | 2 (25%) |
60 & over | 6 (14%) | 1 (13%) |
Are you based in London (within the M25)? | ||
Yes | 28 (61%) | 6 (75%) |
No | 18 (39%) | 2 (25%) |
Type of activity involved ina | ||
Membership of Advisory Group | 3 (7%) | 8 (100%) |
Participant involvement meetings | 32 (70%) | 2 (25%) |
Communicating results | 16 (35%) | 6 (75%) |
Email review of documents or findings | 18 (39%) | 4 (50%) |
Extended Community Engagement Group with media organisations | 2 (4%) | 4 (50%) |
Ever been involved in similar processes before | 4 (9%) | 4 (50%) |
Do you think your involvement made a difference to the study? | ||
Yes | 34 (74%) | 8 (100%) |
No | 12 (26%) | 0 (0%) |
Did your involvement have an impact on your as an individual? | ||
Yes | 33 (72%) | 5 (63%) |
No | 13 (28%) | 3 (38%) |
If you represented a community organisation in the PROUD study, did your involvement have an impact on the organisation you represented? | ||
Yes | N/A | 8 (100%) |
No | 0 (0%) | |
Would you have liked to be more involved? | ||
Yes | 20 (43%) | 3 (38%) |
No | 24 (52%) | 5 (63%) |
In future HIV prevention trials, is there anything we should do differently when we involve people? | ||
Yes | 18 (39%) | 3 (38%) |
No | 28 (61%) | 5 (63%) |
Would you recommend being actively involved in such activities to others? | ||
Yes | 34 (85%) | 8 (100%) |
No | 3 (8%) | 0 (0%) |
It depends | 3 (8%) | 0 (0%) |