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Table 1 Study characteristics and quality of the nine eligible publications

From: Patient involvement in preparing health research peer-reviewed publications or results summaries: a systematic review and evidence-based recommendations

RefStudySponsor typePatient involvement in publication (background)Patient involvement in lay summaries of clinical trial resultsGrading score (Newcastle-Ottawa Scale)Therapeutic areaCountryPublisher
AuthorContributorAuthorContributor
[19]Absolom K, et al. Qual Life Res. 2015.NIHRY
(PPI group member)
Y
(PPI group member)
NNPoor/fair qualityOncologyUKSpringer Nature
[20]Pollard K, et al. Int J Health Care Qual Assur. 2015.Higher Education Innovation Fund, West of England UniversityNY
(service user research partners)
NNPoor/fair qualityGeneralUKEmerald
[21]Hyde C, et al. Health Expect. 2017.NIHRNY
(patient research user group members)
NNGood qualityPainUKWiley
[22]Mann C, et al. Res Involv Engagem. 2018.NIHR Health Services and Delivery Research ProgrammeY
(Patient Involvement in Primary Care Research group)
Y
(Patient Involvement in Primary Care Research group)
NNGood qualityChronic multiple morbiditiesUKBMC
Springer Nature
[23]Pérez Jolles MP, et al. Health Expect. 2017.PCORIY
(mentor parent group members)
Y
(mentor parent group members)
NNGood qualityMental healthUSWiley
[24]Howe A, et al. Res Involv Engagem. 2017.NIHR Health Services and Delivery Research ProgrammeY
(PPI representatives)
Y
(PPI representatives)
NNGood qualityGeneralUKBMC
Springer Nature
[25]Forsythe L, et al. Qual Life Res. 2018.PCORIY
(patient advisor)
Y
(patients, caregivers, advocacy groups)
NNGood qualityGeneralUSSpringer Nature
[26]Blackburn S, et al. Res Involv Engagem. 2018.NIHR School for Primary Care ResearchY
(PPI contributors)
Y
(PPI contributors)
NNGood qualityGeneral
Primary care
UKBMC
Springer Nature
[27]Barnfield S, et al. Res Involv Engagem. 2017.Medical Research Council, UKNNNNFair qualityStrokeUKBMC
Springer Nature
  1. NIHR National Institute for Health Research, PCORI Patient-Centered Outcomes Research Institute, PPI patient and public involvement