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Table 1 Intended and Actual involvement opportunities in doctoral research

From: Patient and public involvement in doctoral research: reflections and experiences of the PPI contributors and researcher

TimescaleIntended Involvement in research activitiesActual involvement in research activitiesTraining provided by SDImpact
Short-term (10/2013–06/2014)- Involvement in preparing PhD proposal for funding
- Reviewing the proposal and providing feedback
- Involvement in systematic review
o Reviewing and commenting on the review protocol
o Further stages of the systematic review
- Involvement in preparing PhD proposal for funding
- Involvement in systematic review
o Reviewing and commenting on review protocol
- Educational session on what a systematic review is and the process involved when undertaking a review.- Validated the need to explore the topic area and develop research question.
- Additional terms to search strategy, definition of BAME groups when exploring from an international perspective
Medium-term (07/2014–12/2015)- Reviewing and commenting on:
o Study protocol
o Ethics application form, especially those sections that need to be writing in lay language/lay summary
o Participant information sheets and consent forms
o Topic guide for interviews
- Reviewing and commenting on:
o Study protocol
o Ethics application form, especially those sections that need to be written in lay language/lay summary
o Participant information sheets and consent forms
o Topic guide for interviews
o Practice interview
- None- Ensured information sheet and consent form was in plain English and jargon free
- Changes to wording of topic guide and order of questions, re-define public involvement
- Practice interviews increased researcher confidence
Long-term (05/2015–09/2017)o Participant recruitment strategies
o Data analysis
o Dissemination of research findings (co-organising and facilitating the dissemination event).
o Co-authoring documents, for example: summaries of research findings, publications
o Participant recruitment strategies
o Data analysis
o Dissemination of research findings through co-facilitation of the event
o Lay summary part of doctoral thesis
o Co-author reflective paper
- Educational session on what a thematic analysis is and the processes involved- Enabled swift recruitment of study participants
- Discussing findings helped identify other topics that required further exploration
- Co-facilitation of dissemination event ensured engagement of all participants and co-authoring papers to share experiences from different perspectives.