Table 3 Recommendations from this research project
- Plan and allocate resources to undertake PPI - Identify training opportunities on PPI and offer PPI contributors training opportunities - Involve PPI contributors as early as possible - One-size does not fit all, so consider a combination of different approaches to involvement - Consider different experiential expertise which potential PPI contributors can bring to the table not just their experience of a condition but also other sources of experiences such as prior PPI experience, research participation experience as different experiential knowledge is relevant in different context. - Building trust and relationship key to maintaining relational dynamics can contribute to continued involvement - Building trust and links with community group leaders is needed to engage with BAME groups - Fostering a culture where PPI contributors as critical friends-a valued component of the research process - Impact of PPI at some stages can be as simple as validating decision-making or findings - Record all PPI activities during the course of the research cycle - Careful monitoring to ensure that intended involvement translates to practice |