Table 4 Categories and sub-categories of participants’ experiences of the co-creative collaboration
Category | Sub-category |
|---|---|
Reasons for investing in a long-term collaboration | Negative experiences of information and care |
Desire to improve cancer care | |
Engaging topics | |
Chance to get answers to own questions | |
The form for the collaboration attracted interest | |
Benefits of participating | Participation as a kind of therapy |
An educational and fun activity | |
My work feels relevant and meaningful | |
Improving the research | Contributes to making the research project relevant, acceptable and tailored |
A more thought-through research process | |
Indicates quality of the project | |
Elements of success | Engaged and committed participants |
Strive towards a common goal | |
Clear yet accommodating structure | |
Open and trustworthy atmosphere | |
Input made a difference | |
A diverse group | |
Nice and fun to meet | |
Good leadership | |
Challenges and ways to improve | Greater diversity of group members |
Alternative structure of collaboration to advance progress | |
Distance to meeting venue as an obstacle |