TY - JOUR AU - Barber, R. AU - Boote, J. D. AU - Parry, G. D. AU - Cooper, C. L. AU - Yeeles, P. AU - Cook, S. PY - 2012 DA - 2012// TI - Can the impact of public involvement on research be evaluated? A mixed methods study JO - Health Expect VL - 15 UR - https://doi.org/10.1111/j.1369-7625.2010.00660.x DO - 10.1111/j.1369-7625.2010.00660.x ID - Barber2012 ER - TY - JOUR AU - Domecq, J. P. AU - Prutsky, G. AU - Elraiyah, T. AU - Wang, Z. AU - Nabhan, M. AU - Shippee, N. PY - 2014 DA - 2014// TI - Patient engagement in research: a systematic review JO - BMC Health Serv Res VL - 14 UR - https://doi.org/10.1186/1472-6963-14-89 DO - 10.1186/1472-6963-14-89 ID - Domecq2014 ER - TY - JOUR AU - Bowen, S. J. AU - Graham, I. D. PY - 2013 DA - 2013// TI - From knowledge translation to engaged scholarship: promoting research relevance and utilization JO - Arch Phys Med Rehabil VL - 94 UR - https://doi.org/10.1016/j.apmr.2012.04.037 DO - 10.1016/j.apmr.2012.04.037 ID - Bowen2013 ER - TY - JOUR AU - Wit, M. AU - Elberse, J. E. AU - Broerse, J. E. W. AU - Abma, T. A. PY - 2015 DA - 2015// TI - Do not forget the professional - the value of the FIRST model for guiding the structural involvement of patients in rheumatology research JO - Health Expect VL - 18 UR - https://doi.org/10.1111/hex.12048 DO - 10.1111/hex.12048 ID - Wit2015 ER - TY - JOUR AU - Sibbald, S. L. AU - Tetroe, J. AU - Graham, I. D. PY - 2014 DA - 2014// TI - Research funder required research partnerships: a qualitative inquiry JO - Implement Sci VL - 9 UR - https://doi.org/10.1186/s13012-014-0176-y DO - 10.1186/s13012-014-0176-y ID - Sibbald2014 ER - TY - JOUR AU - Ross, L. F. AU - Loup, A. AU - Nelson, R. M. AU - Botkin, J. R. AU - Kost, R. AU - Smith, G. R. PY - 2010 DA - 2010// TI - Human subjects protections in community-engaged research: a research ethics framework JO - J Empir Res Hum Res Ethics VL - 5 UR - https://doi.org/10.1525/jer.2010.5.1.5 DO - 10.1525/jer.2010.5.1.5 ID - Ross2010 ER - TY - JOUR AU - Chiu, C. G. AU - Mitchell, T. L. AU - Fitch, M. I. PY - 2013 DA - 2013// TI - From patient to participant: enhancing the validity and ethics of cancer research through participatory research JO - J Cancer Educ VL - 28 UR - https://doi.org/10.1007/s13187-013-0464-2 DO - 10.1007/s13187-013-0464-2 ID - Chiu2013 ER - TY - JOUR AU - Robillard, J. M. AU - Feng, T. L. PY - 2017 DA - 2017// TI - When patient engagement and research ethics collide: lessons from a dementia forum JO - J Alzheimers Dis VL - 59 UR - https://doi.org/10.3233/JAD-161285 DO - 10.3233/JAD-161285 ID - Robillard2017 ER - TY - JOUR AU - Howe, A. AU - Mathie, E. AU - Munday, D. AU - Cowe, M. AU - Goodman, C. AU - Keenan, J. PY - 2017 DA - 2017// TI - Learning to work together - lessons from a reflective analysis of a research project on public involvement JO - Res Involv Engagem. VL - 3 UR - https://doi.org/10.1186/s40900-016-0051-x DO - 10.1186/s40900-016-0051-x ID - Howe2017 ER - TY - BOOK PY - 2020 DA - 2020// TI - Ontario SPOR SUPPORT Unit ID - ref10 ER - TY - BOOK PY - 2012 DA - 2012// TI - Guide to knowledge translation planning at CIHR: Integrated and end of grant approaches ID - ref11 ER - TY - STD TI - Manafo E, Petermann L, Mason-Lai P, Vandall-Walker V. Patient engagement in Canada: a scoping review of the ‘how’ and ‘what’ of patient engagement in health research. Health Res Policy Syst. 2018;16(1):5–11. ID - ref12 ER - TY - JOUR AU - Greenhalgh, T. AU - Hinton, L. AU - Finlay, T. AU - Macfarlane, A. AU - Fahy, N. AU - Clyde, B. PY - 2019 DA - 2019// TI - Frameworks for supporting patient and public involvement in research: systematic review and co-design pilot JO - Health Expect VL - 22 UR - https://doi.org/10.1111/hex.12888 DO - 10.1111/hex.12888 ID - Greenhalgh2019 ER - TY - STD TI - Jull JE, Davidson L, Dungan R, Nguyen T, Woodward KP, Graham ID. A review and synthesis of frameworks for engagement in health research to identify concepts of knowledge user engagement. BMC Med Res Methodol. 2019;19(1):211–13. ID - ref14 ER - TY - JOUR AU - Shippee, N. D. AU - Garces, J. AU - Domecq, J. P. AU - Lopez, G. J. AU - Wang, Z. AU - Elraiyah, T. A. PY - 2015 DA - 2015// TI - Patient and service user engagement in research: systematic review and synthesized framework JO - Health Expect VL - 18 UR - https://doi.org/10.1111/hex.12090 DO - 10.1111/hex.12090 ID - Shippee2015 ER - TY - BOOK PY - 2014 DA - 2014// TI - Strategy for Patient-Oriented Research - Patient Engagement Framework ID - ref16 ER - TY - JOUR AU - Hewlett, S. AU - Wit, M. AU - Richards, P. AU - Quest, E. AU - Hughes, R. AU - Heiberg, T. PY - 2006 DA - 2006// TI - Patients and professionals as research partners: challenges, practicalities, and benefits JO - Arthritis Care Res VL - 55 UR - https://doi.org/10.1002/art.22091 DO - 10.1002/art.22091 ID - Hewlett2006 ER - TY - JOUR AU - Armstrong, M. J. AU - Mullins, C. D. AU - Gronseth, G. S. AU - Gagliardi, A. R. PY - 2018 DA - 2018// TI - Impact of patient involvement on clinical practice guideline development: a parallel group study JO - Implement Sci VL - 13 UR - https://doi.org/10.1186/s13012-018-0745-6 DO - 10.1186/s13012-018-0745-6 ID - Armstrong2018 ER - TY - JOUR AU - Hyde, C. AU - Dunn, K. M. AU - Higginbottom, A. AU - Chew-Graham, C. A. PY - 2017 DA - 2017// TI - Process and impact of patient involvement in a systematic review of shared decision making in primary care consultations JO - Health Expect VL - 20 UR - https://doi.org/10.1111/hex.12458 DO - 10.1111/hex.12458 ID - Hyde2017 ER - TY - JOUR AU - Armstrong, N. AU - Herbert, G. AU - Aveling, E. L. AU - Dixon-Woods, M. AU - Martin, G. PY - 2013 DA - 2013// TI - Optimizing patient involvement in quality improvement JO - Health Expect VL - 16 UR - https://doi.org/10.1111/hex.12039 DO - 10.1111/hex.12039 ID - Armstrong2013 ER - TY - JOUR AU - Caron-Flinterman, J. F. AU - Broerse, J. E. W. AU - Bunders, J. F. G. PY - 2007 DA - 2007// TI - Patient partnership in decision-making on biomedical research JO - Sci Technol Human Values VL - 32 UR - https://doi.org/10.1177/0162243906298354 DO - 10.1177/0162243906298354 ID - Caron-Flinterman2007 ER - TY - JOUR AU - Brett, J. AU - Staniszewska, S. AU - Mockford, C. AU - Herron-Marx, S. AU - Hughes, J. AU - Tysall, C. PY - 2014 DA - 2014// TI - A systematic review of the impact of patient and public involvement on service users, researchers and communities JO - Patient. VL - 7 UR - https://doi.org/10.1007/s40271-014-0065-0 DO - 10.1007/s40271-014-0065-0 ID - Brett2014 ER - TY - JOUR AU - Maccarthy, J. AU - Guerin, S. AU - Wilson, A. G. AU - Dorris, E. R. PY - 2019 DA - 2019// TI - Facilitating public and patient involvement in basic and preclinical health research JO - PLoS One VL - 14 UR - https://doi.org/10.1371/journal.pone.0216600 DO - 10.1371/journal.pone.0216600 ID - Maccarthy2019 ER - TY - JOUR AU - Collins, K. AU - Boote, J. AU - Ardron, D. AU - Gath, J. AU - Green, T. AU - Ahmedzai, S. H. PY - 2015 DA - 2015// TI - Making patient and public involvement in cancer and palliative research a reality: academic support is vital for success JO - BMJ Support Palliat Care VL - 5 UR - https://doi.org/10.1136/bmjspcare-2014-000750 DO - 10.1136/bmjspcare-2014-000750 ID - Collins2015 ER - TY - JOUR AU - Ocloo, J. AU - Matthews, R. PY - 2016 DA - 2016// TI - From tokenism to empowerment: progressing patient and public involvement in healthcare improvement JO - BMJ Qual Saf VL - 25 UR - https://doi.org/10.1136/bmjqs-2015-004839 DO - 10.1136/bmjqs-2015-004839 ID - Ocloo2016 ER - TY - JOUR AU - Clarke, C. L. AU - Wilkinson, H. AU - Watson, J. AU - Wilcockson, J. AU - Kinnaird, L. AU - Williamson, T. PY - 2018 DA - 2018// TI - A seat around the table: participatory data analysis with people living with dementia JO - Qual Health Res VL - 28 UR - https://doi.org/10.1177/1049732318774768 DO - 10.1177/1049732318774768 ID - Clarke2018 ER - TY - STD TI - Swarbrick CM, Doors O, Educate K, Davis J, Keady J. Visioning change: co-producing a model of involvement and engagement in research (innovative practice). Dementia. 2016. https://doi.org/10.1177/1471301216674559. ID - ref27 ER - TY - JOUR AU - Bethell, J. AU - Commisso, E. AU - Rostad, H. M. AU - Puts, M. AU - Babineau, J. AU - Grinbergs-Saull, A. PY - 2018 DA - 2018// TI - Patient engagement in research related to dementia: a scoping review JO - Dementia. VL - 17 UR - https://doi.org/10.1177/1471301218789292 DO - 10.1177/1471301218789292 ID - Bethell2018 ER - TY - JOUR AU - Puts, M. T. E. AU - Sattar, S. AU - Ghodraty-Jabloo, V. AU - Hsu, T. AU - Fitch, M. AU - Szumacher, E. PY - 2017 DA - 2017// TI - Patient engagement in research with older adults with cancer JO - J Geriatr Oncol VL - 8 UR - https://doi.org/10.1016/j.jgo.2017.05.002 DO - 10.1016/j.jgo.2017.05.002 ID - Puts2017 ER - TY - JOUR AU - Zaslavsky, O. AU - Cochrane, B. B. AU - Thompson, H. J. AU - Woods, N. F. AU - Herting, J. R. AU - LaCroix, A. PY - 2013 DA - 2013// TI - Frailty JO - Biol Res Nurs VL - 15 UR - https://doi.org/10.1177/1099800412462866 DO - 10.1177/1099800412462866 ID - Zaslavsky2013 ER - TY - JOUR AU - Somes, J. PY - 2017 DA - 2017// TI - What is frailty? JO - J Emerg Nurs VL - 43 UR - https://doi.org/10.1016/j.jen.2017.03.003 DO - 10.1016/j.jen.2017.03.003 ID - Somes2017 ER - TY - JOUR AU - Sampson, E. L. PY - 2012 DA - 2012// TI - Frailty and dementia: common but complex comorbidities JO - Aging Ment Health VL - 16 UR - https://doi.org/10.1080/13607863.2012.657158 DO - 10.1080/13607863.2012.657158 ID - Sampson2012 ER - TY - JOUR AU - Kelley, A. S. AU - Covinsky, K. E. AU - Gorges, R. J. AU - McKendrick, K. AU - Bollens-Lund, E. AU - Morrison, R. S. PY - 2017 DA - 2017// TI - Identifying older adults with serious illness: a critical step toward improving the value of health care JO - Health Serv Res VL - 52 UR - https://doi.org/10.1111/1475-6773.12479 DO - 10.1111/1475-6773.12479 ID - Kelley2017 ER - TY - JOUR AU - Moher, D. AU - Shamseer, L. AU - Clarke, M. AU - Ghersi, D. AU - Liberati, A. AU - Petticrew, M. PY - 2015 DA - 2015// TI - Preferred reporting items for systematic review and meta-analysis protocols (PRISMA-P) 2015 statement JO - BMJ. VL - 349 UR - https://doi.org/10.1136/bmj.g7647 DO - 10.1136/bmj.g7647 ID - Moher2015 ER - TY - STD TI - International Association of Public Participation (IAP2) Public Participation Spectrum. www.iap2canada.ca/Resources/Documents/0702-Foundations-Spectrum-MW-rev2 (1).pdf Accessed 22 Feb 2019. UR - http://www.iap2canada.ca/Resources/Documents/0702-Foundations-Spectrum-MW-rev2 ID - ref35 ER - TY - JOUR AU - Crockett, L. K. AU - Shimmin, C. AU - Wittmeier, K. D. M. AU - Sibley, K. M. PY - 2019 DA - 2019// TI - Engaging patients and the public in Health Research: experiences, perceptions and training needs among Manitoba health researchers JO - Res Involv Engagem. VL - 5 UR - https://doi.org/10.1186/s40900-019-0162-2 DO - 10.1186/s40900-019-0162-2 ID - Crockett2019 ER - TY - STD TI - Covidence systematic review software, Veritas Health Innovation, Melbourne, Australia. [Internet]. Veritas Health Innovation. 2019. Available from: www.covidence.org. Accessed April 2019. UR - https://www.covidence.org ID - ref37 ER - TY - JOUR AU - Houghton, C. AU - Murphy, K. AU - Meehan, B. AU - Thomas, J. AU - Brooker, D. AU - Casey, D. PY - 2017 DA - 2017// TI - From screening to synthesis: using nvivo to enhance transparency in qualitative evidence synthesis JO - J Clin Nurs VL - 26 UR - https://doi.org/10.1111/jocn.13443 DO - 10.1111/jocn.13443 ID - Houghton2017 ER - TY - STD TI - Hong QN, Pluye P, Fàbregues S, Bartlett G, Boardman F, Cargo M, Dagenais P, Gagnon M-P, Griffiths F, Nicolau B, O’Cathain A, Rousseau M-C, Vedel I. Mixed Methods Appraisal Tool (MMAT), version 2018. Registration of Copyright (#1148552), Canadian Intellectual Property Office, Industry Canada. ID - ref39 ER - TY - JOUR AU - Pluye, P. AU - Hong, Q. N. PY - 2014 DA - 2014// TI - Combining the power of stories and the power of numbers: mixed methods research and mixed studies reviews JO - Annu Rev Public Health VL - 35 UR - https://doi.org/10.1146/annurev-publhealth-032013-182440 DO - 10.1146/annurev-publhealth-032013-182440 ID - Pluye2014 ER - TY - JOUR AU - Souto, R. Q. AU - Khanassov, V. AU - Hong, Q. N. AU - Bush, P. L. AU - Vedel, I. AU - Pluye, P. PY - 2015 DA - 2015// TI - Systematic mixed studies reviews: updating results on the reliability and efficiency of the mixed methods appraisal tool JO - Int J Nurs Stud VL - 52 UR - https://doi.org/10.1016/j.ijnurstu.2014.08.010 DO - 10.1016/j.ijnurstu.2014.08.010 ID - Souto2015 ER - TY - JOUR AU - Pace, R. AU - Pluye, P. AU - Bartlett, G. AU - Macaulay, A. C. AU - Salsberg, J. AU - Jagosh, J. PY - 2012 DA - 2012// TI - Testing the reliability and efficiency of the pilot Mixed Methods Appraisal Tool (MMAT) for systematic mixed studies review JO - Int J Nurs Stud VL - 49 UR - https://doi.org/10.1016/j.ijnurstu.2011.07.002 DO - 10.1016/j.ijnurstu.2011.07.002 ID - Pace2012 ER - TY - JOUR AU - Hong, Q. N. AU - Gonzalez-Reyes, A. AU - Pluye, P. PY - 2019 DA - 2019// TI - Improving the usefulness of a tool for appraising the quality of qualitative, quantitative and mixed methods studies, the Mixed Methods Appraisal Tool (MMAT) JO - J Eval Clin Pract VL - 24 UR - https://doi.org/10.1111/jep.12884 DO - 10.1111/jep.12884 ID - Hong2019 ER - TY - STD TI - Moher D, Liberati A, Tetzlaff J, Altman DG, The PRISMA Group. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. PLoS Med. 2009;6(7):e1000097. ID - ref44 ER - TY - JOUR AU - Absolom, K. AU - Holch, P. AU - Woroncow, B. AU - Wright, E. AU - Velikova, G. PY - 2015 DA - 2015// TI - Beyond lip service and box ticking: how effective patient engagement is integral to the development and delivery of patient-reported outcomes JO - Qual Life Res VL - 24 UR - https://doi.org/10.1007/s11136-014-0909-z DO - 10.1007/s11136-014-0909-z ID - Absolom2015 ER - TY - JOUR AU - Arain, M. AU - Pyne, S. AU - Thornton, N. AU - Palmer, S. AU - Sharma, R. A. PY - 2015 DA - 2015// TI - Consumer involvement in cancer research: example from a Cancer network JO - Health Expect VL - 18 UR - https://doi.org/10.1111/hex.12143 DO - 10.1111/hex.12143 ID - Arain2015 ER - TY - JOUR AU - Bates, M. J. AU - Ardrey, J. AU - Mphwatiwa, T. AU - Squire, S. B. AU - Niessen, L. W. PY - 2018 DA - 2018// TI - Enhanced patient research participation: a Photovoice study in Blantyre Malawi JO - BMJ Support Palliat Care VL - 8 UR - https://doi.org/10.1136/bmjspcare-2017-001439 DO - 10.1136/bmjspcare-2017-001439 ID - Bates2018 ER - TY - JOUR AU - Bethell, J. AU - Pringle, D. AU - Chambers, L. W. AU - Cohen, C. AU - Commisso, E. AU - Cowan, K. PY - 2018 DA - 2018// TI - Patient and public involvement in identifying dementia research priorities JO - J Am Geriatr Soc VL - 66 UR - https://doi.org/10.1111/jgs.15453 DO - 10.1111/jgs.15453 ID - Bethell2018 ER - TY - JOUR AU - Bethell, J. AU - Puts, M. T. E. AU - Sattar, S. AU - Andrew, M. K. AU - Choate, A. S. AU - Clarke, B. PY - 2019 DA - 2019// TI - The Canadian frailty priority setting partnership: research priorities for older adults living with frailty JO - Can Geriatr J VL - 22 UR - https://doi.org/10.5770/cgj.22.336 DO - 10.5770/cgj.22.336 ID - Bethell2019 ER - TY - JOUR AU - Burns, L. J. AU - Abbetti, B. AU - Arnold, S. D. AU - Bender, J. AU - Doughtie, S. AU - El-Jawahiri, A. PY - 2018 DA - 2018// TI - Engaging patients in setting a patient-centered outcomes research agenda in hematopoietic cell transplantation JO - Biol Blood Marrow Transplant VL - 24 UR - https://doi.org/10.1016/j.bbmt.2018.01.029 DO - 10.1016/j.bbmt.2018.01.029 ID - Burns2018 ER - TY - JOUR AU - Caldon, L. J. M. AU - Marshall-Cork, H. AU - Speed, G. AU - Reed, M. W. R. AU - Collins, K. A. PY - 2010 DA - 2010// TI - Consumers as researchers – innovative experiences in UK National Health Service Research JO - Int J Consum Stud VL - 34 UR - https://doi.org/10.1111/j.1470-6431.2010.00907.x DO - 10.1111/j.1470-6431.2010.00907.x ID - Caldon2010 ER - TY - JOUR AU - Corner, J. AU - Wright, D. AU - Hopkinson, J. AU - Gunaratnam, Y. AU - McDonald, J. W. AU - Foster, C. PY - 2007 DA - 2007// TI - The research priorities of patients attending UK cancer treatment centres: findings from a modified nominal group study JO - Br J Cancer VL - 96 UR - https://doi.org/10.1038/sj.bjc.6603662 DO - 10.1038/sj.bjc.6603662 ID - Corner2007 ER - TY - JOUR AU - Cotterell, P. AU - Harlow, G. AU - Morris, C. AU - Beresford, P. AU - Hanley, B. AU - Sargeant, A. PY - 2011 DA - 2011// TI - Service user involvement in cancer care: the impact on service users JO - Health Expect VL - 14 UR - https://doi.org/10.1111/j.1369-7625.2010.00627.x DO - 10.1111/j.1369-7625.2010.00627.x ID - Cotterell2011 ER - TY - JOUR AU - Davis, S. F. AU - Silvester, A. AU - Barnett, D. AU - Farndon, L. AU - Ismail, M. PY - 2019 DA - 2019// TI - Hearing the voices of older adult patients: processes and findings to inform health services research JO - Res Involv Engagem. VL - 5 UR - https://doi.org/10.1186/s40900-019-0143-5 DO - 10.1186/s40900-019-0143-5 ID - Davis2019 ER - TY - JOUR AU - Froggatt, K. AU - Preston, N. AU - Turner, M. AU - Kerr, C. PY - 2015 DA - 2015// TI - Patient and public involvement in research and the Cancer experiences collaborative: benefits and challenges JO - BMJ Support Palliat Care VL - 5 UR - https://doi.org/10.1136/bmjspcare-2013-000548 DO - 10.1136/bmjspcare-2013-000548 ID - Froggatt2015 ER - TY - JOUR AU - Heaven, A. AU - Brown, L. AU - Foster, M. AU - Clegg, A. PY - 2016 DA - 2016// TI - Keeping it credible in cohort multiple randomised controlled trials: the community ageing research 75+ (CARE 75+) study model of patient and public involvement and engagement JO - Res Involv Engagem. VL - 2 UR - https://doi.org/10.1186/s40900-016-0044-9 DO - 10.1186/s40900-016-0044-9 ID - Heaven2016 ER - TY - JOUR AU - Iwata, A. J. AU - Olden, H. A. AU - Kippen, K. E. AU - Swegal, W. C. AU - Johnson, C. C. AU - Chang, S. S. PY - 2019 DA - 2019// TI - Flexible model for patient engagement: achieving quality outcomes and building a research agenda for head and neck cancer JO - Head Neck VL - 41 UR - https://doi.org/10.1002/hed.25584 DO - 10.1002/hed.25584 ID - Iwata2019 ER - TY - JOUR AU - Jones, J. AU - Bhatt, J. AU - Avery, J. AU - Laupacis, A. AU - Cowan, K. AU - Basappa, N. PY - 2017 DA - 2017// TI - The kidney cancer research priority-setting partnership: identifying the top 10 research priorities as defined by patients, caregivers, and expert clinicians JO - Can Urol Assoc J VL - 11 UR - https://doi.org/10.5489/cuaj.4590 DO - 10.5489/cuaj.4590 ID - Jones2017 ER - TY - JOUR AU - Jorgensen, C. R. AU - Eskildsen, N. B. AU - Johnsen, A. T. PY - 2018 DA - 2018// TI - User involvement in a Danish project on the empowerment of cancer patients - experiences and early recommendations for further practice JO - Res Involv Engagem VL - 4 UR - https://doi.org/10.1186/s40900-018-0105-3 DO - 10.1186/s40900-018-0105-3 ID - Jorgensen2018 ER - TY - JOUR AU - Jorgensen, C. R. AU - Eskildsen, N. B. AU - Thomsen, T. G. AU - Nielsen, I. D. AU - Johnsen, A. T. PY - 2018 DA - 2018// TI - The impact of using peer interviewers in a study of patient empowerment amongst people in cancer follow-up JO - Health Expect VL - 21 UR - https://doi.org/10.1111/hex.12655 DO - 10.1111/hex.12655 ID - Jorgensen2018 ER - TY - JOUR AU - Lechelt, L. A. AU - Rieger, J. M. AU - Cowan, K. AU - Debenham, B. J. AU - Krewski, B. AU - Nayar, S. PY - 2018 DA - 2018// TI - Top 10 research priorities in head and neck cancer: results of an Alberta priority setting partnership of patients, caregivers, family members, and clinicians JO - Head Neck. VL - 40 UR - https://doi.org/10.1002/hed.24998 DO - 10.1002/hed.24998 ID - Lechelt2018 ER - TY - JOUR AU - Litherland, R. AU - Burton, J. AU - Cheeseman, M. AU - Campbell, D. AU - Hawkins, M. AU - Hawkins, T. PY - 2018 DA - 2018// TI - Reflections on PPI from the ‘Action on living well: asking you’ advisory network of people with dementia and carers as part of the IDEAL study JO - Dementia. VL - 17 UR - https://doi.org/10.1177/1471301218789309 DO - 10.1177/1471301218789309 ID - Litherland2018 ER - TY - JOUR AU - Littlechild, R. AU - Tanner, D. AU - Hall, K. PY - 2015 DA - 2015// TI - Co-research with older people: perspectives on impact JO - Qual Soc Work VL - 14 UR - https://doi.org/10.1177/1473325014556791 DO - 10.1177/1473325014556791 ID - Littlechild2015 ER - TY - JOUR AU - Parveen, S. AU - Barker, S. AU - Kaur, R. AU - Kerry, F. AU - Mitchell, W. AU - Happs, A. PY - 2018 DA - 2018// TI - Involving minority ethnic communities and diverse experts by experience in dementia research: the caregiving HOPE study JO - Dementia. VL - 17 UR - https://doi.org/10.1177/1471301218789558 DO - 10.1177/1471301218789558 ID - Parveen2018 ER - TY - JOUR AU - Perkins, P. AU - Booth, S. AU - Vowler, S. L. AU - Barclay, S. PY - 2008 DA - 2008// TI - What are patients’ priorities for palliative care research? A questionnaire study JO - Palliat Med VL - 22 UR - https://doi.org/10.1177/0269216307085180 DO - 10.1177/0269216307085180 ID - Perkins2008 ER - TY - JOUR AU - Piil, K. AU - Jarden, M. AU - Pii, K. H. PY - 2019 DA - 2019// TI - Research agenda for life-threatening cancer JO - Eur J Cancer Care (Engl) VL - 28 UR - https://doi.org/10.1111/ecc.12935 DO - 10.1111/ecc.12935 ID - Piil2019 ER - TY - STD TI - Schölvinck AFM, de Graaff BMB, van den Beld MJ, Broerse JEW. Research in haematological cancers: what do patients in the Netherlands prioritise? Eur J Cancer Care (Engl). 2019;28(2):e12989. ID - ref67 ER - TY - STD TI - Stephens RJ, Whiting C, Cowan K. Research priorities in mesothelioma: a James Lind Alliance priority setting partnership. Lung Cancer. 2015;89(2):175–180. ID - ref68 ER - TY - JOUR AU - Stevenson, M. AU - Taylor, B. J. PY - 2019 DA - 2019// TI - Involving individuals with dementia as co-researchers in analysis of findings from a qualitative study JO - Dementia. VL - 18 UR - https://doi.org/10.1177/1471301217690904 DO - 10.1177/1471301217690904 ID - Stevenson2019 ER - TY - JOUR AU - Tanner, D. PY - 2012 DA - 2012// TI - Co-research with older people with dementia: experience and reflections JO - J Ment Health VL - 21 UR - https://doi.org/10.3109/09638237.2011.651658 DO - 10.3109/09638237.2011.651658 ID - Tanner2012 ER - TY - JOUR AU - Wright, D. AU - Corner, J. AU - Hopkinson, J. AU - Foster, C. PY - 2006 DA - 2006// TI - Listening to the views of people affected by cancer about cancer research: an example of participatory research in setting the cancer research agenda JO - Health Expect VL - 9 UR - https://doi.org/10.1111/j.1369-7625.2006.00353.x DO - 10.1111/j.1369-7625.2006.00353.x ID - Wright2006 ER - TY - JOUR AU - Wright, D. AU - Hopkinson, J. AU - Corner, J. AU - Foster, C. PY - 2006 DA - 2006// TI - How to involve cancer patients at the end of life as co-researchers JO - Palliat Med VL - 20 UR - https://doi.org/10.1177/0269216306073110 DO - 10.1177/0269216306073110 ID - Wright2006 ER - TY - JOUR AU - Piil, K. AU - Jarden, M. PY - 2016 DA - 2016// TI - Patient involvement in research priorities (PIRE): a study protocol JO - BMJ Open VL - 6 UR - https://doi.org/10.1136/bmjopen-2015-010615 DO - 10.1136/bmjopen-2015-010615 ID - Piil2016 ER - TY - JOUR AU - Perkins, P. AU - Barclay, S. AU - Booth, S. PY - 2007 DA - 2007// TI - What are patients’ priorities for palliative care research? Focus group study JO - Palliat Med VL - 21 UR - https://doi.org/10.1177/0269216307077353 DO - 10.1177/0269216307077353 ID - Perkins2007 ER - TY - JOUR AU - Pii, K. H. AU - Schou, L. H. AU - Piil, K. AU - Jarden, M. PY - 2019 DA - 2019// TI - Current trends in patient and public involvement in cancer research: a systematic review JO - Health Expect VL - 22 UR - https://doi.org/10.1111/hex.12841 DO - 10.1111/hex.12841 ID - Pii2019 ER - TY - JOUR AU - Chambers, E. AU - Gardiner, C. AU - Thompson, J. AU - Seymour, J. PY - 2019 DA - 2019// TI - Patient and carer involvement in palliative care research: an integrative qualitative evidence synthesis review JO - Palliat Med VL - 33 UR - https://doi.org/10.1177/0269216319858247 DO - 10.1177/0269216319858247 ID - Chambers2019 ER - TY - JOUR AU - Holroyd-Leduc, J. AU - Resin, J. AU - Ashley, L. AU - Barwich, D. AU - Elliott, J. AU - Huras, P. PY - 2016 DA - 2016// TI - Giving voice to older adults living with frailty and their family caregivers: engagement of older adults living with frailty in research, health care decision making, and in health policy JO - Res Involv Engagem. VL - 2 UR - https://doi.org/10.1186/s40900-016-0038-7 DO - 10.1186/s40900-016-0038-7 ID - Holroyd-Leduc2016 ER - TY - JOUR AU - Gagliardi, A. R. AU - Kothari, A. AU - Graham, I. D. PY - 2017 DA - 2017// TI - Research agenda for integrated knowledge translation (IKT) in healthcare: what we know and do not yet know JO - J Epidemiol Community Health VL - 71 UR - https://doi.org/10.1136/jech-2016-207743 DO - 10.1136/jech-2016-207743 ID - Gagliardi2017 ER - TY - JOUR AU - Oliver, K. AU - Kothari, A. AU - Mays, N. PY - 2019 DA - 2019// TI - The dark side of coproduction: do the costs outweigh the benefits for health research? JO - Health Res Policy Syst VL - 17 UR - https://doi.org/10.1186/s12961-019-0432-3 DO - 10.1186/s12961-019-0432-3 ID - Oliver2019 ER - TY - JOUR AU - Boivin, A. AU - L'Esperance, A. AU - Gauvin, F. P. AU - Dumez, V. AU - Macaulay, A. C. AU - Lehoux, P. PY - 2018 DA - 2018// TI - Patient and public engagement in research and health system decision making: a systematic review of evaluation tools JO - Health Expect VL - 21 UR - https://doi.org/10.1111/hex.12804 DO - 10.1111/hex.12804 ID - Boivin2018 ER - TY - JOUR AU - Manafo, E. AU - Petermann, L. AU - Vandall-Walker, V. AU - Mason-Lai, P. PY - 2018 DA - 2018// TI - Patient and public engagement in priority setting: a systematic rapid review of the literature JO - PLoS One VL - 13 UR - https://doi.org/10.1371/journal.pone.0193579 DO - 10.1371/journal.pone.0193579 ID - Manafo2018 ER - TY - JOUR AU - Boylan, A. AU - Locock, L. AU - Thomson, R. AU - Staniszewska, S. PY - 2019 DA - 2019// TI - “About sixty per cent I want to do it”: health researchers’ attitudes to, and experiences of, patient and public involvement (PPI)—a qualitative interview study JO - Health Expect VL - 22 UR - https://doi.org/10.1111/hex.12883 DO - 10.1111/hex.12883 ID - Boylan2019 ER - TY - JOUR AU - Phillips, J. L. AU - Currow, D. C. PY - 2010 DA - 2010// TI - Cancer as a chronic disease JO - Collegian. VL - 17 UR - https://doi.org/10.1016/j.colegn.2010.04.007 DO - 10.1016/j.colegn.2010.04.007 ID - Phillips2010 ER - TY - JOUR AU - Ciccarella, A. AU - Staley, A. C. AU - Franco, A. T. PY - 2018 DA - 2018// TI - Transforming research: engaging patient advocates at all stages of cancer research JO - Ann Transl Med VL - 6 UR - https://doi.org/10.21037/atm.2018.04.46 DO - 10.21037/atm.2018.04.46 ID - Ciccarella2018 ER - TY - JOUR AU - Ives, J. AU - Damery, S. AU - Redwod, S. PY - 2013 DA - 2013// TI - PPI, paradoxes and Plato: Who's sailing the ship? JO - J Med Ethics VL - 39 UR - https://doi.org/10.1136/medethics-2011-100150 DO - 10.1136/medethics-2011-100150 ID - Ives2013 ER - TY - JOUR AU - Forbat, L. AU - Hubbard, G. AU - Kearney, N. PY - 2009 DA - 2009// TI - Patient and public involvement: models and muddles JO - J Clin Nurs VL - 18 UR - https://doi.org/10.1111/j.1365-2702.2008.02519.x DO - 10.1111/j.1365-2702.2008.02519.x ID - Forbat2009 ER - TY - JOUR AU - Camp, P. AU - Reid, W. AU - Yamabayashi, C. AU - Brooks, D. AU - Goodridge, D. AU - Chung, F. PY - 2013 DA - 2013// TI - Safe and effective prescription of exercise in acute exacerbations of chronic obstructive pulmonary disease: rationale and methods for an integrated knowledge translation study JO - Can Respir J VL - 20 UR - https://doi.org/10.1155/2013/143570 DO - 10.1155/2013/143570 ID - Camp2013 ER -