TY - JOUR AU - Wicks, P. AU - Richards, T. AU - Denegri, S. AU - Godlee, F. PY - 2018 DA - 2018// TI - Patients’ roles and rights in research. Full partnership with patients is essential to any modern research enterprise JO - BMJ VL - 362 UR - https://doi.org/10.1136/bmj.k3193 DO - 10.1136/bmj.k3193 ID - Wicks2018 ER - TY - STD TI - NIHR INVOLVE, What is public involvement in research? Definition. Accessed August 2020. https://www.invo.org.uk/find-out-more/what-is-public-involvement-in-research-2/. UR - https://www.invo.org.uk/find-out-more/what-is-public-involvement-in-research-2/ ID - ref2 ER - TY - BOOK PY - 2020 DA - 2020// TI - A brief guide to public involvement in funding applications ID - ref3 ER - TY - BOOK PY - 2017 DA - 2017// TI - Engaging and Involving the Public of Wales in Health and Social Care Research ID - ref4 ER - TY - STD TI - Chief Scientists Office, Scotland, Patients and Public webpage. Accessed August 2020. https://www.cso.scot.nhs.uk/patientspublic/. UR - https://www.cso.scot.nhs.uk/patientspublic/ ID - ref5 ER - TY - BOOK AU - Staley, K. PY - 2009 DA - 2009// TI - Exploring Impact: Public involvement in NHS, public health and social care research PB - INVOLVE CY - Eastleigh ID - Staley2009 ER - TY - STD TI - Crocker Joanna C, Ricci-Cabello Ignacio, Parker Adwoa, Hirst Jennifer A, Chant Alan, Petit-Zeman Sophie et al Impact of patient and public involvement on enrolment and retention in clinical trials: systematic review and meta-analysis. BMJ 2018;363:k4738 https://doi.org/https://doi.org/10.1136/bmj.k4738. ID - ref7 ER - TY - JOUR AU - Staniszewska, S. AU - Denegri, S. AU - Matthews, R. AU - Minogue, V. PY - 2018 DA - 2018// TI - Reviewing progress in public involvement in NIHR research: developing and implementing a new vision for the future JO - BMJ Open VL - 8 UR - https://doi.org/10.1136/bmjopen-2017-017124 DO - 10.1136/bmjopen-2017-017124 ID - Staniszewska2018 ER - TY - BOOK AU - Beresford, P. PY - 2020 DA - 2020// TI - PPI Or User Involvement: Taking stock from a service user perspective in the twenty first century. Research Involvement and Engagement Vol 6 Article number: 36 ID - Beresford2020 ER - TY - STD TI - Madden M, Speed E. Beware Zombies and Unicorns: Toward Critical Patient and Public Involvement in Health Research in a Neoliberal Context. Sociol, 2017 https://doi.org/https://doi.org/10.3389/fsoc.2017.00007. ID - ref10 ER - TY - BOOK AU - Cochrane, J. J. PY - 2018 DA - 2018// TI - The trouble with patient and public involvement ID - Cochrane2018 ER - TY - STD TI - NIHR, Going the Extra Mile; Improving the nation’s health and wellbeing through public involvement in research. Accessed August 2020. https://www.nihr.ac.uk/documents/about-us/our-contribution-to-research/how-we-involve-patients-carers-and-the-public/Going-the-Extra-Mile.pdf. UR - https://www.nihr.ac.uk/documents/about-us/our-contribution-to-research/how-we-involve-patients-carers-and-the-public/Going-the-Extra-Mile.pdf ID - ref12 ER - TY - STD TI - Dickersin K, Mayo-Wilson E, Standards for design and measurement would make clinical research reproducible and usable. PNAS 2018 115 (11) 2590–2594; https://doi.org/https://doi.org/10.1073/pnas.1708273114. ID - ref13 ER - TY - STD TI - What Are The Standards for Quality Research, Technical Brief 9, National Centre for the Dissemination of Disability Research, 2005. https://ktdrr.org/ktlibrary/articles_pubs/ncddrwork/focus/focus9/Focus9.pdf. UR - https://ktdrr.org/ktlibrary/articles_pubs/ncddrwork/focus/focus9/Focus9.pdf ID - ref14 ER - TY - STD TI - Greenfield D, Pawsey M, Hinchcliff R, Moldovan M, Braithwaite J. The standard of healthcare accreditation standards: a review of empirical research underpinning their development and impact. BMC Health Serv Res. 2012;12(329). ID - ref15 ER - TY - STD TI - Public Involvement Impact Assessment Framework; PiiAF Study Group 2014. Accessed August 2020. http://piiaf.org.uk/documents/piiaf_draft_standards.pdf. UR - http://piiaf.org.uk/documents/piiaf_draft_standards.pdf ID - ref16 ER - TY - BOOK PY - 2013 DA - 2013// TI - 4Pi National Involvement Standards ID - ref17 ER - TY - STD TI - What Works Scotland, National Standards for Community Engagement, Revised 2016. Accessed August 2020. (Archive website) http://whatworksscotland.ac.uk/publications/national-standards-for-community-engagement/. UR - http://whatworksscotland.ac.uk/publications/national-standards-for-community-engagement/ ID - ref18 ER - TY - BOOK PY - 2105 DA - 2105// TI - Setting the Standards Personal and Public Involvement ID - ref19 ER - TY - STD TI - Health Care Technology Assessment International, Values and Quality Standards for Patient Involvement, 2014. Accessed August 2020. https://htai.org/interest-groups/pcig/values-and-standards/. UR - https://htai.org/interest-groups/pcig/values-and-standards/ ID - ref20 ER - TY - STD TI - Wale J, Scott AM, Bertelsen N, Meade N. Strengthening international patient advocacy perspectives on patient involvement in HTA within the HTAi Patient and Citizen Involvement Interest Group – Commentary. Res Involvement Engagement. 2017;3(3). ID - ref21 ER - TY - STD TI - UK Standards for Public Involvement Development Partnership Website, Literature Consulted 2009. Accessed August 2020. https://sites.google.com/nihr.ac.uk/pi-standards/the-project/literature-consulted. UR - https://sites.google.com/nihr.ac.uk/pi-standards/the-project/literature-consulted ID - ref22 ER - TY - BOOK AU - Allen, D. PY - 2015 DA - 2015// TI - The National Standards for community engagement – Back to the future ID - Allen2015 ER - TY - STD TI - Stuart G, et al. Service user engagement in quality improvement: applying the national involvement standards. J Ment Health Train Educ Pract ISSN: 1755–6228. 2016;7. ID - ref24 ER - TY - STD TI - Matthews R, Kaur M, French C, Baker A, Reed J. How helpful are Patient and Public Involvement strategic documents - Results of a framework analysis using 4Pi National Involvement Standards. Res Involvement Engagement. 2019;5(31). ID - ref25 ER - TY - STD TI - UK Standards for Public Involvement Development Partnership Website, Report of a Workshop, NIHR standards for Patient and Public Involvement (PPI) Exploring why and how to develop and use them, 2016. Accessed August 2020. https://drive.google.com/file/d/0Bwij8ESXcoRbcGtyNGU5Yk9oNFU/view. UR - https://drive.google.com/file/d/0Bwij8ESXcoRbcGtyNGU5Yk9oNFU/view ID - ref26 ER - TY - JOUR AU - Mc Coy, M. PY - 2018 DA - 2018// TI - National Standards for Public Involvement in Research: missing the forest for the trees JO - J Med Ethics VL - 44 UR - https://doi.org/10.1136/medethics-2018-105088 DO - 10.1136/medethics-2018-105088 ID - Mc Coy2018 ER - TY - STD TI - Public involvement in research: values and principles framework: NIHR INVOLVE Southampton; 2015. https://www.invo.org.uk/wp-content/uploads/2017/08/Values-Principles-framework-Jan2016.pdf. Accessed May 2020. UR - https://www.invo.org.uk/wp-content/uploads/2017/08/Values-Principles-framework-Jan2016.pdf ID - ref28 ER - TY - BOOK PY - 2016 DA - 2016// TI - NIHR public involvement Leads' National Meeting ID - ref29 ER - TY - STD TI - UK Standards for Public Involvement Development Partnership, Standards Consultation Summary Report, 2017. Accessed August 2020. https://drive.google.com/file/d/11oK9xOU1cqTcz-iUgKuLEjui2uQPxl8m/view. UR - https://drive.google.com/file/d/11oK9xOU1cqTcz-iUgKuLEjui2uQPxl8m/view ID - ref30 ER - TY - BOOK PY - 2019 DA - 2019// TI - Standards Consultation Analysis Results ID - ref31 ER - TY - BOOK PY - 2018 DA - 2018// TI - Short video of UK public involvement standards ID - ref32 ER - TY - STD TI - Simon Denegri’s Lay Review, 2017. Accessed August 2020. https://simondenegri.com/2017/06/30/stop-press-wake-up-and-smell-the-coffee-consultation-launched-on-uk-wide-draft-standards-for-public-involvement-in-research-officialnihr-researchwales-publichealthni-csoscotland-nihrinvolve/. UR - https://simondenegri.com/2017/06/30/stop-press-wake-up-and-smell-the-coffee-consultation-launched-on-uk-wide-draft-standards-for-public-involvement-in-research-officialnihr-researchwales-publichealthni-csoscotland-nihrinvolve/ ID - ref33 ER - TY - STD TI - Simon Denegri’s Lay Review, 2018. Accessed August 2020. https://simondenegri.com/2018/01/19/newsflash-could-you-be-a-standard-bearer-for-public-involvement-expressions-of-interest-invited-ppistandards-officialnihr-researchwales-publichealthni-cso_scotland/. UR - https://simondenegri.com/2018/01/19/newsflash-could-you-be-a-standard-bearer-for-public-involvement-expressions-of-interest-invited-ppistandards-officialnihr-researchwales-publichealthni-cso_scotland/ ID - ref34 ER - TY - STD TI - UK Standards for Public Involvement Development Partnership, Fine-tuning the draft UK Standards for Public Involvement in Research, Tarpey M, 2019. Accessed August 2020 https://drive.google.com/file/d/1ASYshAeJ6koRmRU8SS0bF9rKv8pYhIcu/view. UR - https://drive.google.com/file/d/1ASYshAeJ6koRmRU8SS0bF9rKv8pYhIcu/view ID - ref35 ER - TY - STD TI - UK Standards for Public Involvement, 2019. Accessed August 2020. https://sites.google.com/nihr.ac.uk/pi-standards/standards. UR - https://sites.google.com/nihr.ac.uk/pi-standards/standards ID - ref36 ER - TY - STD TI - UK Standards for Public Involvement – Implementation Stories, 2020. Accessed August 2020. https://drive.google.com/file/d/1VYke0jlkR_SHvypvr-60gCCmNvZVOnbS/view. UR - https://drive.google.com/file/d/1VYke0jlkR_SHvypvr-60gCCmNvZVOnbS/view ID - ref37 ER -