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Table 1 Pathfinder Standard Sets

From: ‘All hands-on deck’, working together to develop UK standards for public involvement in research

Standards

Context

Key features

Comments

Draft standards for good practice in public involvement in research 2014 [16]

Developed as part of wider project. Public Involvement Impact Assessment Framework (PiiAF)

29 Standards; covering three stages; Beginning, Maintaining and Ending involvement

Built on principles for public involvement. Developed by Universities of Lancaster, Liverpool and Exeter.

National Involvement Standards (4PI), 2013 [17]

For use in mental health and wellbeing services

Five domains; principles, purpose, presence, process and impact, each with a range of sub headings.

Co-produced by National Service User Network.

Reviewed 2015/16 (Reality and Impact Project)

The Scottish National Standards for Community Engagement 2005 [18]

For use in participation and community engagement in Scotland

7 Standards; Inclusion, Support, Planning, Working together, Methods, Communication and Impact

Reviewed in 2015 to reflect policy and legislation changes in community empowerment in Scotland. Build on experience.

The Northern Ireland Health and Social Care Personal and Public Involvement Standards 2015 [19]

Designed for use across social and health care.

5 Standards;

Leadership, Governance, Opportunities (for support and involvement), Knowledge and skills, Measuring outcomes

Built on core values and principles (2007) Developed with Patient and Public Involvement Forum

Values and Standards for Patient Involvement in Health Technology Assessment [20, 21]

For specific use in Clinical Guidance and Health Technology Assessment (HTA) development

5 values; Relevance, Fairness, Equity, Legitimacy, Capacity Building.

5 quality standards for HTA processes generally and 5 for individual HTA’s

Developed by The Health Care Technology Assessment International Coalition

Adopted by National Institute for Health and Clinical Excellence (NICE)