From: ‘All hands-on deck’, working together to develop UK standards for public involvement in research
Standards | Context | Key features | Comments |
---|---|---|---|
Draft standards for good practice in public involvement in research 2014 [16] | Developed as part of wider project. Public Involvement Impact Assessment Framework (PiiAF) | 29 Standards; covering three stages; Beginning, Maintaining and Ending involvement | Built on principles for public involvement. Developed by Universities of Lancaster, Liverpool and Exeter. |
National Involvement Standards (4PI), 2013 [17] | For use in mental health and wellbeing services | Five domains; principles, purpose, presence, process and impact, each with a range of sub headings. | Co-produced by National Service User Network. Reviewed 2015/16 (Reality and Impact Project) |
The Scottish National Standards for Community Engagement 2005 [18] | For use in participation and community engagement in Scotland | 7 Standards; Inclusion, Support, Planning, Working together, Methods, Communication and Impact | Reviewed in 2015 to reflect policy and legislation changes in community empowerment in Scotland. Build on experience. |
The Northern Ireland Health and Social Care Personal and Public Involvement Standards 2015 [19] | Designed for use across social and health care. | 5 Standards; Leadership, Governance, Opportunities (for support and involvement), Knowledge and skills, Measuring outcomes | Built on core values and principles (2007) Developed with Patient and Public Involvement Forum |
Values and Standards for Patient Involvement in Health Technology Assessment [20, 21] | For specific use in Clinical Guidance and Health Technology Assessment (HTA) development | 5 values; Relevance, Fairness, Equity, Legitimacy, Capacity Building. 5 quality standards for HTA processes generally and 5 for individual HTA’s | Developed by The Health Care Technology Assessment International Coalition Adopted by National Institute for Health and Clinical Excellence (NICE) |