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Table 3 Levels and methods of public involvement in maternal and Newborn health PSP in Uganda

From: Maternal and newborn health priority setting partnership in rural Uganda in association with the James Lind Alliance: a study protocol

Stage of JLA process Public involvement Level Public involvement method Specific involvement activities
1. Initial enquiry None N/A N/A
2. Form Steering group consult Interviews Invitations
3. Identify and invite partners collaborate Representatives of mothers, health workers Recruit wider stakeholders
4. Inaugural steering group meeting collaborate
lead/ support
PSP SG group
Academic research group
Meetings
Teleconferences
5. Initial launch meeting collaborate
lead/ support
Partners’ group meeting/ Workshop Stakeholders workshop
Pilot testing the data tool
Comment on questions
Launch initial survey
6. Initial survey to gather questions consult
Involve
Lead/support
Individual interviews
Focus groups
Lay mothers’ review
SG reviews
e-data capture (mobile)
Paper based survey
SG and lay mothers’ Meetings
7. Data processing & refining questions User controlled research
Lead/support
SG review
Academic research group
Meetings
Phone calls, WhatsApp
Emails
Zoom
8. Verifying indicative questions User controlled research
Lead/support
SG review
Academic research group
Meetings
Phone calls, WhatsApp
Emails
Zoom
9. Presentation of raw submissions for interim prioritisation User controlled research SG review Meetings
Phone calls, WhatsApp
Emails
Zoom
10. Interim prioritisation consult
Involve
Lead/support
Face to face survey
Focus groups
Lay mothers’ review
SG reviews
e-data capture (mobile)
Paper based survey
11. Identify top 30
Analysis
Collaboration Steering group review Face to face meeting
Zoom
12. Final priority setting
Identify top 10
Collaborate Workshop in Mbale Small groups
Plenary sessions
13. Next steps Collaborate Dissemination
Quality assurance
Checking data
14. Communication User controlled
Lead/support
Dissemination
Conferences, twitter
stakeholders meeting
Preparation of newspaper article