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Table 3 Levels and methods of public involvement in maternal and Newborn health PSP in Uganda

From: Maternal and newborn health priority setting partnership in rural Uganda in association with the James Lind Alliance: a study protocol

Stage of JLA process

Public involvement Level

Public involvement method

Specific involvement activities

1. Initial enquiry

None

N/A

N/A

2. Form Steering group

consult

Interviews

Invitations

3. Identify and invite partners

collaborate

Representatives of mothers, health workers

Recruit wider stakeholders

4. Inaugural steering group meeting

collaborate

lead/ support

PSP SG group

Academic research group

Meetings

Teleconferences

5. Initial launch meeting

collaborate

lead/ support

Partners’ group meeting/ Workshop

Stakeholders workshop

Pilot testing the data tool

Comment on questions

Launch initial survey

6. Initial survey to gather questions

consult

Involve

Lead/support

Individual interviews

Focus groups

Lay mothers’ review

SG reviews

e-data capture (mobile)

Paper based survey

SG and lay mothers’ Meetings

7. Data processing & refining questions

User controlled research

Lead/support

SG review

Academic research group

Meetings

Phone calls, WhatsApp

Emails

Zoom

8. Verifying indicative questions

User controlled research

Lead/support

SG review

Academic research group

Meetings

Phone calls, WhatsApp

Emails

Zoom

9. Presentation of raw submissions for interim prioritisation

User controlled research

SG review

Meetings

Phone calls, WhatsApp

Emails

Zoom

10. Interim prioritisation

consult

Involve

Lead/support

Face to face survey

Focus groups

Lay mothers’ review

SG reviews

e-data capture (mobile)

Paper based survey

11. Identify top 30

Analysis

Collaboration

Steering group review

Face to face meeting

Zoom

12. Final priority setting

Identify top 10

Collaborate

Workshop in Mbale

Small groups

Plenary sessions

13. Next steps

Collaborate

Dissemination

Quality assurance

Checking data

14. Communication

User controlled

Lead/support

Dissemination

Conferences, twitter

stakeholders meeting

Preparation of newspaper article