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Table 7 Roles young people with a chronic condition played in different phases of projects according to the project teams (N = 15)

From: Patient and public involvement of young people with a chronic condition: lessons learned and practical tips from a large participatory program

N Listener Co-thinker Advisor Partner Decision-maker Totala
Totala 8 13 10 10 6 x
Preparation 3 8 6 5 0 13
Execution 5 9 6 7 6 14
Implementation 2 9 7 4 3 15
  1. a The number of unique projects that involved young people with a chronic condition in a specific role or during a specific phase. The totals are lower than the sum of the rows and columns, since young people with a chronic condition can play multiple roles during one phase
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Research Involvement and Engagement

ISSN: 2056-7529

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