TY - JOUR AU - Gregory, S. AU - Bunnik, E. M. AU - Callado, A. B. AU - Carrie, I. AU - De Boer, C. AU - Duffus, J. AU - Fauria, K. AU - Forster, S. AU - Gove, D. AU - Knezevic, I. AU - Laquidain, A. AU - Pennetier, D. AU - Saunders, S. AU - Sparks, S. AU - Rice, J. AU - Ritchie, C. W. AU - Milne, R. PY - 2020 DA - 2020/10/15 TI - Involving research participants in a pan-European research initiative: the EPAD participant panel experience JO - Research Involvement and Engagement SP - 62 VL - 6 IS - 1 AB - Including participants in patient and public involvement activities is increasingly acknowledged as a key pillar of successful research activity. Such activities can influence recruitment and retention, as well as researcher experience and contribute to decision making in research studies. However, there are few established methodologies of how to set up and manage participant involvement activities. Further, there is little discussion of how to do so when dealing with collaborative projects that run across countries and operate in multiple linguistic and regulatory contexts. SN - 2056-7529 UR - https://doi.org/10.1186/s40900-020-00236-z DO - 10.1186/s40900-020-00236-z ID - Gregory2020 ER -