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Table 1 Overview of local and central panel set-up arrangements in the EPAD LCS study

From: Involving research participants in a pan-European research initiative: the EPAD participant panel experience

 

Scotland

England

France

The Netherlands

Spain

Central panel

Initial introduction and invite to panel

Invite letter/email to all participants

Invite letter/email to all participants

Invite letter/email to all participants

Introduced during annual meeting

Selected participants contacted by telephone

Discussed by staff during local panel meetings

Panel enrolment criteria

Allocated on first come first serve basis

Allocated on first come first serve basis

Participants prioritised based on time in the study

Allocated on first come first serve basis

Allocated on first come first serve basis

Nominated by members of local panels

Waiting list for new members in operation?

Yes

Yes

Yes

No

Yes

No

Chair

Participant

Participant

Participant

Participant

Participant

Staff

Vice-chair

Role not established

Role not established

Participant

Role not established

Participant

Role not established

Frequency of meetings

Every 6 months

Every 6 months

Every 6 months

Every 6 months

Every 3 months

Once a year at General Assembly meeting

Number of participants

12

8

9

7

8

6–10

Communication methods

Face to face, post, email and telephone

Face to face, post, email and telephone

Face to face, email and telephone

Face to face and email

Face to face, post, email and telephone and WhatsApp

Face to face