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Table 1 Overview of local and central panel set-up arrangements in the EPAD LCS study

From: Involving research participants in a pan-European research initiative: the EPAD participant panel experience

  Scotland England France The Netherlands Spain Central panel
Initial introduction and invite to panel Invite letter/email to all participants Invite letter/email to all participants Invite letter/email to all participants Introduced during annual meeting Selected participants contacted by telephone Discussed by staff during local panel meetings
Panel enrolment criteria Allocated on first come first serve basis Allocated on first come first serve basis Participants prioritised based on time in the study Allocated on first come first serve basis Allocated on first come first serve basis Nominated by members of local panels
Waiting list for new members in operation? Yes Yes Yes No Yes No
Chair Participant Participant Participant Participant Participant Staff
Vice-chair Role not established Role not established Participant Role not established Participant Role not established
Frequency of meetings Every 6 months Every 6 months Every 6 months Every 6 months Every 3 months Once a year at General Assembly meeting
Number of participants 12 8 9 7 8 6–10
Communication methods Face to face, post, email and telephone Face to face, post, email and telephone Face to face, email and telephone Face to face and email Face to face, post, email and telephone and WhatsApp Face to face