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Table 4 Quantitative results of the survey for patient research partners (PRPs; N = 6)

From: Development and formative evaluation of patient research partner involvement in a multi-disciplinary European translational research project

Q1. What kind of impact has PRP involvement had on EuroTEAM overall?
 Extremely negative impactNegative impactSlightly negative impactNo impactSlightly positive impactPositive impactExtremely positive impact
Number (%) of PRPs000006 (100%)0
Q2. How much do you feel you have been able to contribute positively to WPs 1–3? (WP1 genetics, WP2 blood, WP3 tissue)
 No contribution at allMinor contributionModerate contributionLarge contributionExtremely large contribution  
Number (%) of PRPs03 (50%)2 (33%)1 (17%)0  
Q3. How much do you feel you have been able to contribute positively to WP4 (dissemination & user integration)?
 No contribution at allMinor contributionModerate contributionLarge contributionExtremely large contribution  
Number (%) of PRPs003 (50%)3 (50%)0  
Q4. How well did you feel you understood the objectives, methods and outcomes of EuroTEAM?
 Did not understand at allUnderstood a littleModerate understandingUnderstood a lotUnderstood everything  
Number (%) of PRPs005 (83%)1 (17%)0  
Q5. How did you feel about the number of assignments for PRPs in EuroTEAM?
 Far too few assignmentsToo few assignmentsAbout the right number of assignmentsToo many assignmentsFar too many assignments  
Number (%) of PRPs03 (50%)3 (50%)00  
Q6. How did you feel about the level of difficulty of the assignments for PRPs in EuroTEAM?
 Far too difficultToo difficultAbout the right level of difficultyToo easyFar too easy  
Number (%) of PRPs006 (100%)00  
Q7. How did you feel about the amount of information you received about assignments for PRPs in EuroTEAM?
 Far too little informationToo little informationAbout the right amount of informationToo much informationFar too much information  
Number (%) of PRPs006 (100%)00  
Q8. How useful did you find the glossary for PRPs?
 Not at all usefulNot very usefulModerately usefulVery usefulExtremely useful  
Number (%) of PRPs0005 (83%)1 (17%)  
Q9. How welcome did you feel your opinions were?
 Not at all welcomeNot very welcomeModerately welcomeVery welcomeExtremely welcome  
Number (%) of PRPs0004 (67%)2 (33%)  
Q10. How well was PRP involvement co-ordinated?
 Not at all well- coordinatedNot very well- coordinatedModerately well-coordinatedVery well- coordinatedExtremely well-coordinated  
Number (%) of PRPs0001 (17%)5 (83%)  
Q11. How did you feel about the amount of feedback you received on the outcome of your contribution to assignments for PRPs?
 Far too little feedbackToo little feedbackAbout the right amount of feedbackToo much feedbackFar too much feedback  
Number (%) of PRPs1 (17%)2 (33%)3 (50%)00  
Q12. How did you feel about how fairly your contributions to the EuroTEAM project have been acknowledged?
 Not at all fairlyNot very fairlyModerately fairlyVery fairlyExtremely fairly  
Number (%) of PRPs0003 (50%)3 (50%)  
Q13. How well did you feel your contribution to EuroTEAM meetings was supported?
 Not at all well supportedNot very well supportedModerately well supportedVery well supportedExtremely
well supported
  
Number (%) of PRPs001 (17%)2 (33%)3 (50%)  
Q14. How interested are you in contributing to future research projects as a PRP?
 Not at all interestedNot very interestedModerately interestedVery interestedExtremely interested  
Number (%) of PRPs0002 (33%)4 (67%)