Development and formative evaluation of patient research partner involvement in a multi-disciplinary European translational research project

Birch, Rebecca; Simons, Gwenda; Wähämaa, Heidi; McGrath, Catherine M.; Johansson, Eva C.; Skingle, Diana; Bayliss, Kerin; Starling, Bella; Gerlag, Danielle M.; Buckley, Christopher D.; Stack, Rebecca J.; Raza, Karim; Falahee, Marie

doi:10.1186/s40900-020-0178-7

Table 5 Quantitative results of the survey for researchers (N = 15)

From: Development and formative evaluation of patient research partner involvement in a multi-disciplinary European translational research project

Q1. How much experience of working with PRPs did you have before your involvement with EuroTEAM?
	No experience at all	Slight experience	Moderate experience	A good deal of experience	Extensive experience
Number (%) of researchers	7 (46.7%)	2 (13.3%)	2 (13.3%)	2 (13.3%)	2 (13.3%)
Q2a. Which WP have you been most involved with?
	WP1 (genetic biomarkers)	WP2 (blood biomarkers)	WP3 (tissue biomarkers)	WP4 (user integration)
Number (%) of researchers	0	5 (33.3%)	4 (26.7%)	6 (40.0%)
Q2b. How much do you feel that PRPs have been able to contribute positively to this WP?
	No contribution at all	Minor contribution	Moderate contribution	Large contribution	Extremely large contribution
Number (%) of researchers	2 (13.3%)	2 (13.3%)	1 (6.7%)	7 (46.7%)	3 (20.0%)
Related WP	WP2 (1) WP3 (1)	WP2 (1) WP3 (1)	WP2 (1)	WP2 (2) WP3 (2) WP4 (3)	WP4 (3)
Q3a. Which other WPs have you been involved with (if any)?¹
	WP1 (genetic biomarkers)	WP2 (blood biomarkers)	WP3 (tissue biomarkers)	WP4 (user integration)
Number (%) of researchers	2 (40%)	0 (0%)	2 (40%)	1 (20%)
Q3b. How much do you feel that PRPs have been able to contribute positively to this WP?
	No contribution at all	Minor contribution	Moderate contribution	Large contribution	Extremely large contribution
Number (%) of researchers	2 (40%)	1 (20%)	1 (20%)	0 (0%)	1 (20%)
Related WP	WP1 (2)	WP3 (1)	WP3 (1)	N/A	WP4 (1)
Q4. What kind of impact do you think PRP involvement has had on EuroTEAM overall?
	Extremely negative impact	Negative impact	Slightly negative impact	No impact	Slightly positive impact	Positive impact	Extremely positive impact
Number (%) of researchers	0	0	0	0	2 (13.3%)	6 (40%)	7 (46.7%)
Q5. Did you have any practical experience of working with patients within EuroTEAM?
	Yes	No
Number (%) of researchers	10 (66.7%)	5 (33.3%)

¹5 of the 15 respondents were involved with more than one work package

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ISSN: 2056-7529

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