Fig. 2From: The practice of active patient involvement in rare disease research using ICT: experiences and lessons from the RUDY JAPAN projectSample views of RUDY JAPAN. The sample views of top page (a), the dynamic consent page (b) and sample questionnaire pages for the neuromuscular diseases [INQOL] (c) and the hereditary angioedema [HAE attack record] (d) are shown [21]Back to article page