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Fig. 3 | Research Involvement and Engagement

Fig. 3

From: The practice of active patient involvement in rare disease research using ICT: experiences and lessons from the RUDY JAPAN project

Fig. 3

RUDY JAPAN governance structure. Patients and researchers are members of the Steering Committee. The issues or proposals that emerge from the Steering Committee are presented to the Research Management Group for consideration and implementation. Data Management is conducted by the Registration Office and the Data Center. The Disease Specific Research Sections comprise medical researchers who are responsible for each study

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Research Involvement and Engagement

ISSN: 2056-7529

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