Skip to main content
Fig. 4 | Research Involvement and Engagement

Fig. 4

From: The practice of active patient involvement in rare disease research using ICT: experiences and lessons from the RUDY JAPAN project

Fig. 4

Questionnaire development process. Only the items of the questionnaire where contents were changed are shown in this figure. The first draft was made by the researchers. The second draft reflects the patient partner’s opinions on the first draft. The third draft was developed through the first online meeting, which was attended by both the patient partner and researchers. An independent review by medical researchers and subsequent online meetings resulted in the final draft. The items in the black box are the fixed questions. *This item includes medical institutions and home. **This item includes whether the patient visited a medical institution by him/herself, with someone’s help or by ambulance

Back to article page