Table 3 Dynamic consent content
Data use preferences | |
Primary data use | |
- data that have already been submitted | |
- data that will be submitted | |
Clinical data (e.g., diagnosis, laboratory data) | |
- data that have already been submitted | |
- data that will be submitted | |
Secondary data use | |
- by researchers in non-profit institutions | |
- by researchers in for-profit institutions | |
Links to other data | |
- to other familial data | |
- to the data collected in other research | |
Contact from the office | |
Notification about questionnaire assignment | |
Dissemination of research progression | |
Re-contact for ethically approved studies |