Table 1 Results from Baseline Survey: Parent Experience (n = 9)
Strongly Agree n (%) | Somewhat Agree n (%) | Neither Agree nor Disagree n (%) | Somewhat Disagree n (%) | Strongly Disagree n (%) | |
|---|---|---|---|---|---|
I understand the purpose of P-PAG. | 8 (89) | 1 (11) | – | – | – |
I understand my own role on the P-PAG. | 8 (89) | 1 (11) | – | – | – |
The supports I need to participate P-PAG are available (e.g., travel costs, preparation for meetings). | 7 (78) | 1 (11) | 1 (11) | – | – |
I have enough information to contribute to the topics being discussed. | 8 (89) | 1 (11) | – | – | – |
I feel confident contributing to the discussions. | 7 (78) | 2 (22) | – | – | – |
I have the opportunity to express my opinions when I have something to say. | 7 (78) | 2 (22) | – | – | – |
I feel that my views are heard. | 8 (89) | 1 (11) | – | – | – |
I feel that my views are respected and valued. | 6 (67) | 1 (11) | 1 (11) | 1 (11) | – |
It is clear when and why my opinions are being sought. | 7 (78) | 2 (22) | – | – | – |
If there are differences of opinion or disagreements, they are handled appropriately. | 4 (44) | 4 (44) | 1 (11) | – | – |
I feel P-PAG is a good use of my time. | 6 (67) | 2 (22) | 1 (11) | – | – |
If we needed members, I would be comfortable recommending P-PAG to a colleague or friend. | 6 (67) | 3 (33) | – | – | – |
I think P-PAG will make a difference in Pediatric Research. | 3 (33) | 3 (33) | 3 (33) | – | – |
I am confident that P-PAG will yield the desired outcomes. | 3 (33) | 3 (33) | 3 (33) | – | – |