Table 3 Perception of how anonymised health data is currently used. Respondents were asked whether they believed that their health data was currently used for the seven purposes outlined
Own healthcare | Organising services within the hospital | Projects which improve NHS services | Research by NHS staff | Research by university researchers | Research by drug companies or medical technology companies | Research by companies who do not provide healthcare products or services | |||||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
Yes | No | Unsure | Yes | No | Unsure | Yes | No | Unsure | Yes | No | Unsure | Yes | No | Unsure | Yes | No | Unsure | Yes | No | Unsure | |
Age (years) | |||||||||||||||||||||
12–17 | 100% | 0.0% | 0.0% | 54.2% | 18.6% | 27.1% | 47.5% | 33.9% | 18.6% | 57.6% | 32.2% | 10.2% | 33.9% | 47.5% | 18.6% | 25.4% | 47.5% | 27.1% | 8.5% | 66.1% | 25.4% |
18–24 | 100% | 0.0% | 0.0% | 64.7% | 5.9% | 29.4% | 52.9% | 29.4% | 17.6% | 70.6% | 17.6% | 11.8% | 47.1% | 41.2% | 11.8% | 29.4% | 58.8% | 11.8% | 23.5% | 64.7% | 11.8% |
25–34 | 94.3% | 3.8% | 1.89% | 80.8% | 11.5% | 7.7% | 83.0% | 9.4% | 7.5% | 73.6% | 13.2% | 13.2% | 26.9% | 46.2% | 26.9% | 25.0% | 53.8% | 21.2% | 11.5% | 61.5% | 26.9% |
35–44 | 94.6% | 2.7% | 2.7% | 67.6% | 5.4% | 27.0% | 54.1% | 8.1% | 37.8% | 48.6% | 21.6% | 29.7% | 18.9% | 51.4% | 29.7% | 21.6% | 56.8% | 21.6% | 10.8% | 73.0% | 16.2% |
45–54 | 87.2% | 2.6% | 10.3% | 73.7% | 10.5% | 15.8% | 68.4% | 10.5% | 21.1% | 60.5% | 13.2% | 26.3% | 34.2% | 31.6% | 34.2% | 26.3% | 31.6% | 42.1% | 23.7% | 52.6% | 23.7% |
55–64 | 95.1% | 0.0% | 4.9% | 75.0% | 7.5% | 17.5% | 47.5% | 20.0% | 32.5% | 57.5% | 27.5% | 15.0% | 35.0% | 40.0% | 25.0% | 22.5% | 55.0% | 22.5% | 10.0% | 75.0% | 15.0% |
65–74 | 100% | 0.0% | 0.0% | 80.0% | 12.5% | 7.5% | 62.5% | 25.0% | 12.5% | 43.6% | 43.6% | 12.8% | 23.1% | 64.1% | 12.8% | 12.8% | 71.8% | 15.4% | 10.3% | 87.2% | 2.6% |
75–84 | 100% | 0.0% | 0.0% | 73.3% | 0.0% | 26.7% | 66.7% | 20.0% | 13.3% | 53.3% | 33.3% | 13.3% | 35.7% | 42.9% | 21.4% | 40.0% | 40.0% | 20.0% | 14.3% | 71.4% | 14.3% |
85+ | 100% | 0.0% | 0.0% | 80.0% | 0.0% | 20.0% | 40.0% | 20.0% | 40.0% | 40.0% | 40.0% | 20.0% | 20.0% | 80.0% | 0.0% | 20.0% | 80.0% | 0.0% | 25.0% | 75.0% | 0.0% |
Gender | |||||||||||||||||||||
Male | 96.7% | 1.7% | 1.7% | 74.8% | 10.9% | 14.3% | 63.0% | 22.7% | 14.3% | 61.9% | 22.0% | 16.1% | 34.7% | 48.3% | 16.9% | 25.4% | 54.2% | 20.3% | 16.1% | 66.9% | 16.9% |
Female | 96.1% | 1.1% | 2.8% | 67.9% | 10.7% | 21.4% | 59.2% | 17.9% | 22.9% | 56.4% | 27.9% | 15.6% | 27.7% | 46.3% | 26.0% | 22.5% | 52.2% | 25.3% | 10.7% | 71.2% | 18.1% |
Ethnicity | |||||||||||||||||||||
White | 96.3% | 1.4% | 2.3% | 69.6% | 10.3% | 20.1% | 59.1% | 20.0% | 20.9% | 60.3% | 22.0% | 17.8% | 30.5% | 44.1% | 25.4% | 24.4% | 49.3% | 26.3% | 12.7% | 67.9% | 19.3% |
Asian/ Asian British | 95.6% | 0.0% | 4.4% | 75.6% | 8.9% | 15.6% | 57.8% | 17.8% | 24.4% | 51.1% | 28.9% | 20.0% | 24.4% | 55.6% | 20.0% | 20.0% | 60.0% | 20.0% | 15.6% | 68.9% | 15.6% |
Black/ African/Caribbean/ Black British | 95.8% | 0.00% | 4.2% | 66.7% | 16.7% | 16.7% | 66.7% | 20.8% | 12.5% | 62.5% | 33.3% | 4.2% | 39.1% | 52.2% | 8.7% | 33.3% | 58.3% | 8.3% | 13.0% | 69.6% | 17.4% |
Mixed/ multiple ethnic groups | 100.0% | 0.00% | 0.0% | 70.0% | 10.0% | 20.0% | 50.0% | 20.0% | 30.0% | 20.0% | 70.0% | 10.0% | 10.0% | 70.0% | 20.0% | 10.0% | 70.0% | 20.0% | 0.0% | 90.0% | 10.0% |
Other | 88.9% | 11.1% | 0.0% | 88.9% | 11.1% | 0.0% | 88.9% | 11.1% | 0.0% | 66.7% | 22.2% | 11.1% | 44.4% | 33.3% | 22.2% | 22.2% | 55.6% | 22.2% | 22.2% | 55.6% | 22.2% |
Participant group | |||||||||||||||||||||
Patient | 100.0% | 0.0% | 0.0% | 77.9% | 4.4% | 17.6% | 57.4% | 16.2% | 26.5% | 48.5% | 30.9% | 20.6% | 30.9% | 50.0% | 19.1% | 23.5% | 61.8% | 14.7% | 14.7% | 80.9% | 4.4% |
Patient carer | 96.2% | 0.0% | 3.8% | 76.9% | 15.4% | 7.7% | 46.2% | 30.8% | 23.1% | 42.3% | 46.2% | 11.5% | 30.8% | 57.7% | 11.5% | 19.2% | 57.7% | 23.1% | 16.0% | 68.0% | 16.0% |
Visiting someone | 93.3% | 0.0% | 6.7% | 66.7% | 13.3% | 20.0% | 60.0% | 6.7% | 33.3% | 60.0% | 13.3% | 26.7% | 26.7% | 33.3% | 40.0% | 26.7% | 40.0% | 33.3% | 0.0% | 80.0% | 20.0% |
NHS Staff | 94.0% | 2.4% | 3.6% | 78.0% | 11.0% | 11.0% | 77.1% | 12.0% | 10.8% | 73.5% | 18.1% | 8.4% | 30.5% | 48.8% | 20.7% | 20.7% | 57.3% | 22.0% | 11.0% | 69.5% | 19.5% |
NHS Volunteer | 92.3% | 0.0% | 7.7% | 92.3% | 7.7% | 0.0% | 92.3% | 7.7% | 0.0% | 91.7% | 8.3% | 0.0% | 45.5% | 36.4% | 18.2% | 50.0% | 33.3% | 16.7% | 45.5% | 45.5% | 9.1% |
Public member | 93.3% | 3.3% | 3.3% | 56.7% | 6.7% | 36.7% | 43.3% | 20.0% | 36.7% | 40.0% | 20.0% | 40.0% | 16.7% | 43.3% | 40.0% | 16.7% | 50.0% | 33.3% | 13.3% | 60.0% | 26.7% |