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Table 5 Acceptability of the use of anonymised health data by purpose Respondents were asked whether they would be happy for their anonymised health data to be used for seven purposes, without being asked for their consent

From: Perceptions of anonymised data use and awareness of the NHS data opt-out amongst patients, carers and healthcare staff

 

Own healthcare

Organising services within the hospital

Projects which improve NHS services

Research by NHS staff

Research by university researchers

Research by drug companies or medical technology companies

Research by companies who do not provide healthcare products or services

Yes

No

Unsure

Yes

No

Unsure

Yes

No

Unsure

Yes

No

Unsure

Yes

No

Unsure

Yes

No

Unsure

Yes

No

Unsure

Age (years)

 12–17

100.0%

0.0%

0.0%

89.8%

5.1%

5.1%

94.9%

1.7%

3.4%

98.3%

1.7%

0.0%

79.7%

11.9%

8.5%

86.4%

8.5%

5.1%

52.5%

28.8%

18.6%

 18–24

100.0%

0.0%

0.0%

94.1%

0.0%

5.9%

94.1%

5.9%

0.0%

93.6%

6.3%

0.0%

82.4%

17.6%

0.0%

82.4%

17.6%

0.0%

64.7%

29.4%

5.9%

 25–34

98.1%

0.0%

1.9%

96.2%

1.9%

1.9%

96.2%

1.9%

1.9%

94.3%

1.9%

3.8%

86.8%

9.4%

3.8%

62.3%

26.4%

11.3%

41.5%

54.7%

3.8%

 35–44

89.2%

5.4%

5.4%

94.6%

2.7%

2.7%

91.9%

5.4%

2.7%

91.9%

5.4%

2.7%

83.8%

10.8%

5.4%

73.0%

13.5%

13.5%

43.2%

45.9%

10.8%

 45–54

97.4%

0.0%

2.6%

97.4%

0.0%

2.6%

97.4%

0.0%

2.6%

92.3%

5.1%

2.6%

76.9%

7.7%

15.4%

61.5%

17.9%

20.5%

35.9%

41.0%

23.1%

 55–64

100.0%

0.0%

0.0%

97.5%

2.5%

0.0%

95.0%

2.5%

2.5%

92.5%

2.5%

5.0%

92.5%

2.5%

5.0%

75.0%

10.0%

15.0%

41.0%

46.2%

12.8%

 65–74

97.5%

0.0%

2.5%

97.5%

0.0%

2.5%

95.0%

0.0%

5.0%

90.0%

2.5%

7.5%

92.5%

2.5%

5.0%

55.0%

15.0%

30.0%

22.5%

40.0%

37.5%

 75–84

100.0%

0.0%

0.0%

93.8%

0.0%

6.3%

93.8%

0.0%

6.3%

93.3%

0.0%

6.7%

80.0%

6.7%

13.3%

33.3%

40.0%

26.7%

26.7%

46.7%

26.7%

 85+

100.0%

0.0%

0.0%

100.0%

0.0%

0.0%

100.0%

0.0%

0.0%

100.0%

0.0%

0.0%

100.0%

0.0%

0.0%

50.0%

25.0%

25.0%

50.0%

25.0%

25.0%

Gender

 Male

99.2%

0.0%

0.8%

99.2%

0.8%

0.0%

98.3%

0.8%

0.8%

97.5%

0.8%

1.7%

85.0%

8.3%

6.7%

73.3%

15.8%

10.8%

43.7%

43.7%

12.6%

 Female

96.6%

1.1%

2.2%

92.8%

2.8%

4.4%

92.8%

2.8%

4.4%

91.6%

3.9%

4.5%

86.0%

6.7%

7.3%

65.4%

16.8%

17.9%

40.8%

39.1%

20.1%

Ethnicity

 White

97.2%

0.5%

2.3%

94.4%

1.9%

3.7%

94.4%

1.4%

4.2%

94.9%

1.4%

3.7%

83.3%

8.3%

8.3%

69.4%

15.3%

15.3%

39.5%

41.9%

18.6%

 Asian/ Asian British

97.8%

2.2%

0.0%

95.6%

4.4%

0.0%

95.6%

4.4%

0.0%

88.9%

8.9%

2.2%

86.7%

8.9%

4.4%

62.2%

22.2%

15.6%

48.9%

42.2%

8.9%

 Black/ African/Caribbean/ Black British

100.0%

0.0%

0.0%

100.0%

0.0%

0.0%

100.0%

0.0%

0.0%

91.3%

4.3%

4.3%

87.0%

8.7%

4.3%

56.5%

26.1%

17.4%

34.8%

39.1%

26.1%

 Mixed/ multiple ethnic groups

100.0%

0.0%

0.0%

90.0%

0.0%

10.0%

90.0%

10.0%

0.0%

90.0%

10.0%

0.0%

90.0%

10.0%

0.0%

80.0%

10.0%

10.0%

40.0%

50.0%

10.0%

 Other

100.0%

0.0%

0.0%

100.0%

0.0%

0.0%

100.0%

0.0%

0.0%

100.0%

0.0%

0.0%

100.0%

0.0%

0.0%

100.0%

0.0%

0.0%

66.7%

22.2%

11.1%

Participant group

 Patient

97.1%

0.0%

2.9%

95.7%

0.0%

4.3%

95.7%

0.0%

4.3%

92.8%

1.4%

5.8%

94.2%

1.4%

4.3%

63.8%

13.0%

23.2%

41.2%

32.4%

26.5%

 Patient carer

100.0%

0.0%

0.0%

96.0%

4.0%

0.0%

96.0%

4.0%

0.0%

92.3%

3.8%

3.8%

88.0%

4.0%

8.0%

72.0%

16.0%

12.0%

52.0%

28.0%

20.0%

 Visiting someone

100.0%

0.0%

0.0%

100.0%

0.0%

0.0%

100.0%

0.0%

0.0%

93.3%

6.7%

0.0%

93.3%

6.7%

0.0%

86.7%

13.3%

0.0%

13.3%

86.7%

0.0%

 Here because of my work

95.2%

2.4%

2.4%

96.4%

2.4%

1.2%

94.0%

3.6%

2.4%

91.6%

4.8%

3.6%

85.5%

8.4%

6.0%

62.7%

25.3%

12.0%

41.0%

51.8%

7.2%

 Volunteer

100.0%

0.0%

0.0%

100.0%

0.0%

0.0%

100.0%

0.0%

0.0%

100.0%

0.0%

0.0%

84.6%

15.4%

0.0%

53.8%

30.8%

15.4%

30.8%

53.8%

15.4%

 Public member

100.0%

0.0%

0.0%

100.0%

0.0%

0.0%

100.0%

0.0%

0.0%

100.0%

0.0%

0.0%

86.7%

3.3%

10.0%

63.3%

10.0%

26.7%

40.0%

40.0%

20.0%