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Table 2 Survey responses

From: Using a 3 stage process to create a consumer research contact list in a paediatric health setting: the PARTICIPATE project

Survey items Responses
n (%)
Adult age (years) (n=367)
 <18 6 (1.63)
 19-25 14 (3.81)
 26-35 116 (31.61)
 35-49 202 (55)
 50 or older 29 (7.9)
Identify as Aboriginal or Torres Strait Islander
 Adult 10 (2.7)
 Child 22 (6.1)
Language spoken at home
 English 329 (89.7)
 Other: Mandarin/Cantonese (n=6) Arabic (n=4), Mayalam (n=4), Punjabi (n=3), Nepalese, Shona, Somali, Spanish and Tagalog (n=2 each), and Bengali, Gujarati, Japanese, Khmer, Kiswahili, Luganda, Maori, Portuguese, Sinhala and Tamil (n=1 each) 38 (10.3)
Child age (years) n (=361)
 <1 41 (11.4)
 1-5 113 (31.3)
 6-9 72 (19.9)
 10-13 93 (25.8)
 14 or older 42 (11.6)
Child is currently participating in research
 Yes: oncology, allergy and immunology, respiratory, longitudinal cohort, epilepsy, renal, genetics 25(6.9%)
Please indicate your willingness to be part of a future research contact list (n= 359)
 Yes 196 (54.6)
 Undecided 57 (15.9)
 I need more information before I decide 27 (7.5)
 No 79 (22)
You will only be contacted about research approved by the child and adolescent health service research ethics committee. Please indicate which organisations’ research you would be happy to be contacted about:
 The Health Service 183 (97.3)
 The Health Service or the co-located Research Institute 171 (91.9)
 Any collaborating organisation 154 (82.4)
Preferred information delivery methods about future research studies (more than one response was allowed) (n=342)
aEmail 212a
aSocial Media (PCH Facebook=57 Instagram= 40 YouTube =14) 111a
aText message or phone call 78a
aInformation screens in hospitals 51a
aSelf check-in kiosks in hospitals 27a
 Brochures (not specified as paper or electronic) 130
 Letters 91
 Outpatient visits 63
 During hospital admission or discharge 54
 Advertising e.g. TV, billboards, buses 25
 Banners in the hospital 24
 Newspapers 15
Maximum number of studies to be contacted about in 1 year period (n=353)
 1 86 (24.4)
 2 71 (20.1)
 3 32 (9.1)
 4 4 (1.1)
 5 4 (1.1)
 >5 21 (6)
 Unsure 83 (23.5)
 Does not want to be contacted 52 (14.7)
Preferred person with whom to have research conversation (more than one response allowed) (n=352)
 Any of the listed Health Service staff 164
 Doctor 112
 Researcher 67
 Nurse 66
 Allied health professional 42
 Someone I have seen before at the clinic 25
 Administrative staff such as clinic receptionist 13
 I do not want to be asked 43
 Other specified - Unsure 1
  1. aTotal for all electronic methods of communication