Table 2 Survey responses
Survey items | Responses n (%) |
|---|---|
Adult age (years) | (n=367) |
 <18 | 6 (1.63) |
 19-25 | 14 (3.81) |
 26-35 | 116 (31.61) |
 35-49 | 202 (55) |
 50 or older | 29 (7.9) |
Identify as Aboriginal or Torres Strait Islander | |
 Adult | 10 (2.7) |
 Child | 22 (6.1) |
Language spoken at home | |
 English | 329 (89.7) |
 Other: Mandarin/Cantonese (n=6) Arabic (n=4), Mayalam (n=4), Punjabi (n=3), Nepalese, Shona, Somali, Spanish and Tagalog (n=2 each), and Bengali, Gujarati, Japanese, Khmer, Kiswahili, Luganda, Maori, Portuguese, Sinhala and Tamil (n=1 each) | 38 (10.3) |
Child age (years) | n (=361) |
 <1 | 41 (11.4) |
 1-5 | 113 (31.3) |
 6-9 | 72 (19.9) |
 10-13 | 93 (25.8) |
 14 or older | 42 (11.6) |
Child is currently participating in research | |
 Yes: oncology, allergy and immunology, respiratory, longitudinal cohort, epilepsy, renal, genetics | 25(6.9%) |
Please indicate your willingness to be part of a future research contact list | (n= 359) |
 Yes | 196 (54.6) |
 Undecided | 57 (15.9) |
 I need more information before I decide | 27 (7.5) |
 No | 79 (22) |
You will only be contacted about research approved by the child and adolescent health service research ethics committee. Please indicate which organisations’ research you would be happy to be contacted about: | |
 The Health Service | 183 (97.3) |
 The Health Service or the co-located Research Institute | 171 (91.9) |
 Any collaborating organisation | 154 (82.4) |
Preferred information delivery methods about future research studies (more than one response was allowed) | (n=342) |
 aEmail | 212a |
 aSocial Media (PCH Facebook=57 Instagram= 40 YouTube =14) | 111a |
 aText message or phone call | 78a |
 aInformation screens in hospitals | 51a |
 aSelf check-in kiosks in hospitals | 27a |
 Brochures (not specified as paper or electronic) | 130 |
 Letters | 91 |
 Outpatient visits | 63 |
 During hospital admission or discharge | 54 |
 Advertising e.g. TV, billboards, buses | 25 |
 Banners in the hospital | 24 |
 Newspapers | 15 |
Maximum number of studies to be contacted about in 1 year period | (n=353) |
 1 | 86 (24.4) |
 2 | 71 (20.1) |
 3 | 32 (9.1) |
 4 | 4 (1.1) |
 5 | 4 (1.1) |
 >5 | 21 (6) |
 Unsure | 83 (23.5) |
 Does not want to be contacted | 52 (14.7) |
Preferred person with whom to have research conversation (more than one response allowed) | (n=352) |
 Any of the listed Health Service staff | 164 |
 Doctor | 112 |
 Researcher | 67 |
 Nurse | 66 |
 Allied health professional | 42 |
 Someone I have seen before at the clinic | 25 |
 Administrative staff such as clinic receptionist | 13 |
 I do not want to be asked | 43 |
 Other specified - Unsure | 1 |