Table 1 Overview of the patient-led research programme
Overview of Discovery Group |
|---|
All patients on the secure ward for adults with mental disorders were invited to voluntarily attend a new group in which they would learn about research and have the opportunity to carry out their own research. The group was facilitated by a clinician with research interests and co-facilitated by ward clinical staff available on the day. All staff members involved in facilitating the group were therefore known to patients. During the programme, patients were referred to as “researchers” |
Learning objectives of Discovery Group |
At the start of the programme, patients were informed of the following learning objectives: |
1. To identify something new to “discover” (the research question) |
2. To work out how to discover it in the current setting (the method) in a safe, ethical and confidential way (i.e., no personal information will be collected about patients or staff or anyone else) |
3. To collect information to discover it (data collection) |
4. To see what has been discovered (results) |
5. To decide what the discovery means for us and others (interpretation and implications) |
6. To agree with whom the discovery will be shared (dissemination) |