Table 2 Response frequencies for motivational items (yes) and factor loadings for the latent motivational dimensions from the principal component analysis, N = 147

Family motivation

That it leads to a change in the situation of my family member

45%

(65)

68.29 ^b

(12.35)

44%

(53)

48%

(11)

44%

(48)

43%

(15)

52%^a

(47)

32%

(17)

Getting to know more about the situation of my family member

40%

(58)

72.28

(10.38)

33% ^a

(40)

74%

(17)

39%

(42)

43%

(15)

41%

(37)

37%

(20)

Getting in contact with others in the same situation

36%

(53)

70.85

(10.69)

36%

(43)

39%

(9)

35%

(38)

37%

(13)

37%

(33)

35%

(19)

That it leads to a change in my situation

31%

(45)

67.69^b

(12.62)

32%

(39)

22%

(5)

31%

(33)

34%

(12)

32%

(29)

30%

(16)

Getting to know more about my caring situation

29%

(43)

71.19

(10.96)

29%

(35)

26%

(6)

32%

(35)

20%

(7)

31%

(28)

24%

(13)

Getting to know what the study will lead to

21%

(30)

68.83

(9.84)

22%

(26)

13%

(3)

19%

(21)

23%

(8)

22%

(20)

17%

(9)

Greater good motivation

The research being about something I find important

56%²

(81)

69.12

(11.10)

57%

(69)

44%

(10)

57%

(61)

49%

(17)

61%

(55)

46%

(25)

Research must move forward (i.e. someone has to do it)

52%

(76)

69.91

(11.95)

49% ^a

(59)

74%

(17)

55%

(59)

49%

(17)

56%

(50)

46%

(25)

To contribute to society

40%

(58)

67.43 ^b

(12.14)

40%

(48)

39%

(9)

45% ^a

(48)

26%

(9)

41%

(37)

39%

(21)

To have better services and products

21%

(31)

69.13

(9.83)

21%

(25)

22%

(5)

21%

(23)

20%

(7)

20%

(18)

22%

(12)

Being helpful to the researcher

19%

(28)

73.32

(10.18)

17%

(21)

30%

(7)

23%

(25)

9%

(3)

21%

(19)

17%

(9)

I have nothing to lose

14%

(21)

73.29

(7.16)

15%

(18)

9%

(2)

13%

(14)

17%

(6)

16%

(14)

11%

(6)

To get a sense of being important

10%

(14)

69.29

(10.73)

10%

(12)

9%

(2)

10%

(11)

9%

(3)

10%

(9)

7%

(4)

Being prioritised for services (e.g. healthcare, social care, service, residency)

6%

(8)

70.50

(12.94)

5%

(6)

9%

(2)

5%

(5)

9%

(3)

4%

(4)

7%

(4)