Table 2 Type of input provided

Prepare input to the agency

1

3

2

Present to committee meetings

0

0

2

Participate as a committee member

1

0

3

Provide a statement in public meetings

0

0

1

Take part in the agency consultation meetings

0

0

2

Provide patient experts to participate in workshops and meetings

0

0

2

Provide feedback on draft recommendations

1

4

2

Participate in hearings

0

1

2

Collect and report information about members’/patients’ needs, perspectives and experiences to inform input

2

3

4

Undertake or commission research about patients’/members’ needs, preferences and experiences

0

1

4

Provide information to patients about how patients can provide input to process

1

3

2