Table 2 Participant self-assessment of PCOR knowledge Likert scale responses pre- and post-training
Training 1: research 101 (patients/caregivers only) | Patient/caregiver (n = 17) | |||||
|---|---|---|---|---|---|---|
Median response [IQR] | ||||||
Post only | ||||||
I can describe the different types of research methods used in PCOR | 4 [4, 4] | |||||
I can describe the processes, sections, and terminology of a research grant | 4 [4, 4] | |||||
I can describe the processes of disseminating study findings (e.g., publication, poster, oral presentation) | 4 [4, 5] |
Training 2: PCOR 101 (both learner groups) | Patient/caregiver (n = 15) | Researchers/providers (n = 11) | ||||
|---|---|---|---|---|---|---|
Median response | Difference | Median response | Difference | |||
Pre | Post | p value | Pre | Post | p value | |
I can identify the benefits and value of patient/caregiver engagement in research | 4 | 5 | 0.13 | 4 | 5 | 0.13 |
I can define the levels of patient engagement, from minimal to control | 3 | 4 | 0.008 | 3.5 | 5 | 0.031 |
I can describe and provide examples of the core principles of PCOR | 3 | 4 | 0.11 | 3 | 5 | 0.016 |
I can articulate how PCOR findings improve health in the community, raise awareness, and increase patient advocacy | 4 | 4 | 1 | 4 | 5 | 0.063 |
I can identify barriers to adopting PCOR and enablers to undertaking this type of research | 4 | 4 | 0.017 | 4 | 5 | 0.13 |
I can identify ways to turn PCOR work into academic productivity (HCP only) | NA | NA | NA | 4 | 4 | 0.063 |
Training 3: PCOR team dynamics (both learner groups) | Patient/caregiver (n = 15) | Researchers/providers (n = 5) | ||||
|---|---|---|---|---|---|---|
Median response | Difference | Median response | Difference | |||
Pre | Post | p value | Pre | Post | p value | |
I can describe the elements of an effective PCOR team | 3 | 4 | 0.039 | 2 | 5 | 0.25 |
I can describe how to create conditions for patient/caregiver partners to be active participants within a PCOR team at every step of the research process (HCP only) | NA | NA | NA | 2 | 5 | 0.063 |
I can describe how to be an active participant in a PCOR team in every step of the process (pts only) | 2 | 4 | 0.012 | NA | NA | NA |
I can identify barriers to successfully functioning PCOR teams | 4 | 4 | 0.004 | 2 | 5 | 0.13 |
I can articulate potential solutions to address barriers to successfully functioning PCOR teams | 4 | 5 | 0.021 | 3 | 4 | 0.063 |
I know how confidentiality of patient/caregiver partners will be maintained on a PCOR team | 4 | 5 | 0.18 | 4 | 5 | 0.25 |
Training 4: PCOR study design (researchers/providers only) | Researchers/providers (n = 21) | |||||
|---|---|---|---|---|---|---|
Median response | Diff | |||||
Pre | Post | |||||
I know how to identify patients and caregivers to participate as partners in research | 4 | 4 | 0.039 | |||
I know how to formulate research questions from patient-driven priorities | 4 | 4 | 0.039 | |||
I can describe successful components of patient engaged research in a grant application | 4 | 4 | 0.006 | |||
I can articulate the role of patient and caregiver partners at every stage of the research project | 3 | 4 | 0.001 | |||